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New Video From NORD Promotes Awareness of Rare Movement Disorder

A new video released recently by the National Organization for Rare Disorders (NORD) is intended to promote awareness among both patients and physicians of the rare neurological disorder known as neurogenic orthostatic hypotension (nOH). This condition occurs in people with an existing disease of the brain, spinal cord, or peripheral nerves. It can be associated with Parkinson’s disease, multiple system atrophy (MSA), and pure autonomic failure (PAF).   

Patients with nOH experience a drop in blood pressure upon standing, caused by a malfunction in the autonomic nervous system. Patients frequently describe symptoms such as dizziness, lightheadedness, or fainting.

The video features patient interviews, including one with a patient treated at NYU Langone Medical Center; interviews with medical experts at Boston Medical Center and Massachusetts General Hospital; and information about resources for patients, including a NORD patient assistance program. The video may be viewed here: https://www.youtube.com/watch?v=Yu6kNqznvQU

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A new video released recently by the National Organization for Rare Disorders (NORD) is intended to promote awareness among both patients and physicians of the rare neurological disorder known as neurogenic orthostatic hypotension (nOH). This condition occurs in people with an existing disease of the brain, spinal cord, or peripheral nerves. It can be associated with Parkinson’s disease, multiple system atrophy (MSA), and pure autonomic failure (PAF).   

Patients with nOH experience a drop in blood pressure upon standing, caused by a malfunction in the autonomic nervous system. Patients frequently describe symptoms such as dizziness, lightheadedness, or fainting.

The video features patient interviews, including one with a patient treated at NYU Langone Medical Center; interviews with medical experts at Boston Medical Center and Massachusetts General Hospital; and information about resources for patients, including a NORD patient assistance program. The video may be viewed here: https://www.youtube.com/watch?v=Yu6kNqznvQU

A new video released recently by the National Organization for Rare Disorders (NORD) is intended to promote awareness among both patients and physicians of the rare neurological disorder known as neurogenic orthostatic hypotension (nOH). This condition occurs in people with an existing disease of the brain, spinal cord, or peripheral nerves. It can be associated with Parkinson’s disease, multiple system atrophy (MSA), and pure autonomic failure (PAF).   

Patients with nOH experience a drop in blood pressure upon standing, caused by a malfunction in the autonomic nervous system. Patients frequently describe symptoms such as dizziness, lightheadedness, or fainting.

The video features patient interviews, including one with a patient treated at NYU Langone Medical Center; interviews with medical experts at Boston Medical Center and Massachusetts General Hospital; and information about resources for patients, including a NORD patient assistance program. The video may be viewed here: https://www.youtube.com/watch?v=Yu6kNqznvQU

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New Video From NORD Promotes Awareness of Rare Movement Disorder
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New Video From NORD Promotes Awareness of Rare Movement Disorder
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NORD, rare disease,
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NORD, rare disease,
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