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NORD and the Sjogren-Larsson Syndrome (SLS) Network Community have launched an SLS Registry to promote better understanding of the natural history of this rare syndrome and to advance research to improve the lives of patients. The registry is the third to be launched through a platform developed by NORD to serve rare disease patients and researchers. It creates a platform for SLS patients around the world to share information with researchers. For more information, see https://slsregistry.rarelaunch.org
NORD and the Sjogren-Larsson Syndrome (SLS) Network Community have launched an SLS Registry to promote better understanding of the natural history of this rare syndrome and to advance research to improve the lives of patients. The registry is the third to be launched through a platform developed by NORD to serve rare disease patients and researchers. It creates a platform for SLS patients around the world to share information with researchers. For more information, see https://slsregistry.rarelaunch.org
NORD and the Sjogren-Larsson Syndrome (SLS) Network Community have launched an SLS Registry to promote better understanding of the natural history of this rare syndrome and to advance research to improve the lives of patients. The registry is the third to be launched through a platform developed by NORD to serve rare disease patients and researchers. It creates a platform for SLS patients around the world to share information with researchers. For more information, see https://slsregistry.rarelaunch.org
