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At its recent Breakthrough Summit, NORD released the first-ever State Progress Report, which documents progress in all 50 states regarding implementing policies pertinent to rare diseases. This report will serve as a baseline to map progress toward future improvement in the states. It is the first comprehensive resource to document inconsistencies among states in four key areas: medical foods coverage, prescription drug cost-sharing requirements, newborn screening, and Medicaid eligibility levels.
The 65-page document contains an executive and national summary, key policy sections, detailed appendices with state-by-state breakdowns, maps, contacts, and resources. The report is also a toolkit providing resources for advocacy on the key issues.
At its recent Breakthrough Summit, NORD released the first-ever State Progress Report, which documents progress in all 50 states regarding implementing policies pertinent to rare diseases. This report will serve as a baseline to map progress toward future improvement in the states. It is the first comprehensive resource to document inconsistencies among states in four key areas: medical foods coverage, prescription drug cost-sharing requirements, newborn screening, and Medicaid eligibility levels.
The 65-page document contains an executive and national summary, key policy sections, detailed appendices with state-by-state breakdowns, maps, contacts, and resources. The report is also a toolkit providing resources for advocacy on the key issues.
At its recent Breakthrough Summit, NORD released the first-ever State Progress Report, which documents progress in all 50 states regarding implementing policies pertinent to rare diseases. This report will serve as a baseline to map progress toward future improvement in the states. It is the first comprehensive resource to document inconsistencies among states in four key areas: medical foods coverage, prescription drug cost-sharing requirements, newborn screening, and Medicaid eligibility levels.
The 65-page document contains an executive and national summary, key policy sections, detailed appendices with state-by-state breakdowns, maps, contacts, and resources. The report is also a toolkit providing resources for advocacy on the key issues.
