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Running for Rare, NORD’s signature charity marathon team, participated as an official charity partner in the Tata Consultancy Services (TCS) New York City Marathon in November. The team participates in several marathons and half-marathons each year to raise funds for NORD’s program for undiagnosed patients. Specifically, the NORD program provides financial assistance for medical testing required of applicants to the Undiagnosed Diseases Network (UDN).
Each runner on the team is paired with a rare disease patient partner. Runners and their partners provide inspiration to each other and promote awareness of specific rare diseases. They also raise funds for the NORD Patient Assistance Program, to which undiagnosed patients are referred by staff at clinical centers affiliated with the UDN.
The team has planned an ambitious season for 2017 beginning with the Los Angeles Marathon on March 19. Runners interested in joining the team can learn more on the NORD website.
Running for Rare, NORD’s signature charity marathon team, participated as an official charity partner in the Tata Consultancy Services (TCS) New York City Marathon in November. The team participates in several marathons and half-marathons each year to raise funds for NORD’s program for undiagnosed patients. Specifically, the NORD program provides financial assistance for medical testing required of applicants to the Undiagnosed Diseases Network (UDN).
Each runner on the team is paired with a rare disease patient partner. Runners and their partners provide inspiration to each other and promote awareness of specific rare diseases. They also raise funds for the NORD Patient Assistance Program, to which undiagnosed patients are referred by staff at clinical centers affiliated with the UDN.
The team has planned an ambitious season for 2017 beginning with the Los Angeles Marathon on March 19. Runners interested in joining the team can learn more on the NORD website.
Running for Rare, NORD’s signature charity marathon team, participated as an official charity partner in the Tata Consultancy Services (TCS) New York City Marathon in November. The team participates in several marathons and half-marathons each year to raise funds for NORD’s program for undiagnosed patients. Specifically, the NORD program provides financial assistance for medical testing required of applicants to the Undiagnosed Diseases Network (UDN).
Each runner on the team is paired with a rare disease patient partner. Runners and their partners provide inspiration to each other and promote awareness of specific rare diseases. They also raise funds for the NORD Patient Assistance Program, to which undiagnosed patients are referred by staff at clinical centers affiliated with the UDN.
The team has planned an ambitious season for 2017 beginning with the Los Angeles Marathon on March 19. Runners interested in joining the team can learn more on the NORD website.