News

White Paper Affirms Value of Orphan Drug Tax Credit in Promoting R&D


 

References

NORD and BIO (the Biotechnology Innovation Organization) have released a white paper examining the impact of the Orphan Drug Tax Credit (ODTC) on the development of treatments for rare diseases. The conclusion is that one-third fewer treatments would have been developed for rare diseases over the past 30 years without the ODTC. Read the white paper: http://rarediseases.org/odtcwhitepaper/

Recommended Reading

Monoclonal gammopathy of undetermined significance: Using risk stratification to guide follow-up
MDedge Family Medicine
Afamelanotide improves erythropoietic protoporphyria
MDedge Family Medicine
FDA approves Orkambi for cystic fibrosis
MDedge Family Medicine
DDW: Study finds pancreatic cancer misdiagnosis rate at 31%
MDedge Family Medicine
Congenital Hyperinsulinism International Issues Statement of Support for New Recommendations
MDedge Family Medicine
Progeria Research Foundation is Accepting Applications for Grants
MDedge Family Medicine
World Federation of Hemophilia Seeks Proposals
MDedge Family Medicine
NORD Announces Rare Disease Research Funding Opportunities
MDedge Family Medicine
NORD and SLS Community Launch Registry for Patients and Researchers
MDedge Family Medicine
200 Patient Organizations Join NORD in Letter to Energy and Commerce Committee
MDedge Family Medicine