News

NORD Speaks on Behalf of Continued Funding for NIH Undiagnosed Diseases Network


 

References

The NIH Undiagnosed Diseases Network (UDN) was expanded last year to include seven centers at locations across the United States. The UDN brings together clinical and research experts from across the US to solve the most challenging medical mysteries using advanced technologies. It is funded by the NIH Common Fund, and at a recent public forum to discuss continuation of funding, a NORD representative spoke about the importance of this network to rare disease patients and their physicians. Any patient can apply to the network with support from his/her physician. Application is made through an online NIH UDN portal.

Recommended Reading

MRI assessment of pulmonary vein stenosis predicts outcomes
MDedge Cardiology
EHR Report: How Zika virus reveals the fault in our EHRs
MDedge Cardiology
Dr. Califf Is Confirmed as FDA Commissioner; NORD Issues Statement
MDedge Cardiology
FDA Offers New Resource on Biosimilars for Health Care Providers
MDedge Cardiology
IOM Report: Mitochondrial Replacement “Ethically Permissible”
MDedge Cardiology
FDA Offers New Resource on Biosimilars for Health Care Providers (copy 1)
MDedge Cardiology
Risk factors identified for thrombosis in pediatric SLE
MDedge Cardiology
NORD Announces 2016 Rare Impact Award Recipients
MDedge Cardiology
Free Summer Camp For Families of Children With Rare Diseases
MDedge Cardiology
News From NORD Round-Up: April 2016
MDedge Cardiology