News from NORD

Ehlers-Danlos Society


 

The Ehlers-Danlos Society will hold an International Symposium Sept. 26-29, 2018, in Ghent, Belgium. Clinicians and researchers are encouraged to attend to discuss the molecular, pathogenic, clinical, and management aspects of all types of Ehlers-Danlos syndromes. More.

Recommended Reading

NCATS Unveils Toolkit for Patient-Focused Therapy Development
MDedge Neurology
NORD Updates Educational Rare Disease Reports
MDedge Neurology
Clone of More Than 100 Patient Organizations Join NORD in Supporting the RARE Act
MDedge Neurology
American Partnership for Eosinophilic Disorders (APFED)
MDedge Neurology
Aplastic Anemia and MDS International Foundation (AAMDSIF)
MDedge Neurology
Children’s Cardiomyopathy Foundation
MDedge Neurology
Cornelia de Lange Syndrome (CdLS) Foundation
MDedge Neurology
CurePSP
MDedge Neurology
Cure SMA
MDedge Neurology
Dup 15q Alliance
MDedge Neurology