News from NORD

Abstracts Being Accepted for Cornelia de Lange Syndrome Foundation Symposium


 

Abstracts are currently being accepted for the Cornelia de Lange Syndrome Foundation’s 8th Biennial Scientific and Education Symposium. The meeting will take place June 27-28, 2018, in Minneapolis. Attendees include physicians in various clinical disciplines, genetic counselors, and research scientists. The meeting encourages interactions between basic and clinical scientists.

Recommended Reading

NIH Undiagnosed Diseases Network to Offer Grand Rounds Webinar Series
MDedge Pediatrics
Cases link vitiligoid lichen sclerosus and darker skin
MDedge Pediatrics
Macrophage activation syndrome’s impact in childhood SLE felt mostly early
MDedge Pediatrics
NORD to Moderate Panel at NIH Rare Disease Day Event
MDedge Pediatrics
Rare Disease Day Events Planned for Campuses, Hospitals, and State Legislatures
MDedge Pediatrics
Letter to Congress: NORD and Others Oppose “Right to Try”
MDedge Pediatrics
NORD Advocates for Iowa Co-pay Choice Bill
MDedge Pediatrics
NORD Submits Comments to the Centers for Medicare and Medicaid Services
MDedge Pediatrics
NORD Call for Abstracts Reopened
MDedge Pediatrics
National Health Council to Host Workshop for Patient Organizations
MDedge Pediatrics