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Patient‐Reported Barriers to Discharge
Thirty‐six million adults were discharged from US hospitals in 2012, with approximately 45% from medicine service lines.[1, 2] Discharge planning, a key aspect of care for hospitalized patients,[3] should involve the development of a plan to enable the patient to be discharged at the appropriate time and with provision of sufficient postdischarge support and services.[4]
Central to the discharge planning process is an assessment of a patient's readiness for discharge. Readiness is often a provider‐driven process, based on specific clinical and health system benchmarks.[5] However, providers' perception of readiness for discharge does not always correlate with patients' self‐assessments or objective measures of understanding.[6] For example, nurses overestimate patients' readiness for discharge compared to patients' own self‐report.[7] As a result, the need to include the patient perspective is increasingly recognized as an important contributing factor in the discharge planning process.[8, 9]
Current approaches to assessing discharge readiness are typically single assessments. However, these assessments do not take into account the complexity of discharge planning or patients' understanding, or their ability to carry out postacute care tasks.[8] In addition, few models have included assessments of physical stability and functional ability along with measures such as ability to manage self‐care activities at home, coping and social support, or access to health system and community resources.[10, 11]
To address these gaps in the existing literature, we carried out a prospective observational study of daily, patient‐reported, assessments of discharge readiness to better understand patients' perspectives on issues that could impede the transition to home. Using these data, we then sought to determine the prevalence of patient‐reported discharge barriers and the frequency with which they were resolved prior to the day of discharge. We also explored whether problems identified at discharge were associated with 30‐day readmission.
METHODS
Study Design, Setting, and Participants
We carried out a prospective observational study at the University of California San Francisco (UCSF) Medical Center, a 600‐bed tertiary care academic hospital in San Francisco, California. The UCSF Committee on Human Research approved this study. We recruited patients between November 2013 and April 2014. Patients were eligible to participate if they were admitted to the General Medicine Service; over 18 years old; English speaking; cognitively able to provide informed consent; and not under contact, droplet, airborne, or radiation isolation. Patients were eligible to participate regardless of where they were admitted from or expected to be discharged (eg, home, skilled nursing facility). Patients were excluded if they were acutely unwell or symptomatic resulting in them being unable to complete the surveys. Caregivers were not able to participate in the study on behalf of patients. We screened daily admission charts for eligibility and approached consecutive patients to consent them into the study on their first or second day of hospitalization. An enrollment tracker was used to documented reasons for patients' exclusion or refusal.
Survey Development
We adapted an existing and validated Readiness for Hospital Discharge Survey (RHDS) previously used in obstetric, surgical, and medicine patients for our study.[10, 11, 12] This initial list was culled from 23 to 12 items, based on input from patients and physicians. This feedback step also prompted a change in the response scale from a 0 to 10 scale to a simpler yes, no, or I would like to talk with someone about this scale intended to encourage discussion between patients and providers. After this revision step, we further pretested the survey among physicians and a small set of general medical patients to assess comprehension. Thus, our final question set included 12 items in 4 domains; personal status (ie, pain, mobility), knowledge (ie, medications, problems to watch for, recovery plan), coping ability (ie, emotional support, who to call with problems), and expected support (ie, related to activities and instrumental activities of daily living).
Data Collection
We collected data from interviews of patients as well as chart abstraction. Trained research assistants approached patients to complete our revised RHDS at admission, which was either on their first or second day of hospitalization. We collected data via an intake admission survey, which asked patients about their readiness for discharge, followed by a daily readiness for discharge survey until the day of discharge. A research assistant read the survey items to patients and recorded responses on a paper version of the survey. We abstracted demographic, clinical, and 30‐day readmission information from each participant's electronic medical record.
Analytic Approach
A barrier to discharge readiness was confirmed when a patient responded no' to an item (except for presence of catheter and pain or discomfort where yes was used) and/or they stated they wanted to talk to someone about the issue. We then used descriptive statistics to summarize patients' responses by survey administration number. Multilevel mixed effect regression was used to investigate any patterns in barriers to discharge over the course of hospitalization. We described the frequency of identified barriers to discharge on the intake admission and final (48 hours of discharge) surveys. McNemar's tests compared the proportion of patients reporting each barrier, and paired t tests the mean number of barriers at these 2 survey time points. We also assessed whether persistent barriers to discharge readiness on the final survey were associated with readmission to our hospital within 30‐days using t tests, 2, or Fisher exact test. Analysis was conducted in SPSS 22.0 (IBM Corp., Armonk, NY) and Stata (StataCorp, College Station, TX).
RESULTS
Patients
There were 2045 patients admitted to the general medicine service during the study period. Medical record screening resulted in 1350 exclusions. Of the remaining 695 patients, 113 refused and 419 were further found to be unable to participate. After all exclusions were applied and following direct screening, 163 patients agreed to participate in our study (Table 1). Mean length of stay among our cohort was 5.42 days (standard deviation [SD], 11.49) and the majority of patients were admitted from and discharged to home (Table 1).
| |
Mean age, y (SD) | 56.4 (17) |
Female gender, no. (%) | 86 (53) |
Race, no. (%) | |
Asian | 13 (8) |
African American | 27 (16) |
White | 96 (59) |
Other | 24 (25) |
Declined to say | 3 (1) |
Married, no. (%) | 78 (48) |
Insurance, no. (%) | |
Medicare | 59 (36) |
Medicaid | 22 (14) |
Private | 73 (45) |
Self‐pay | 2 (1) |
Other | 7 (4) |
Patient admitted from, no. (%) | |
Home | 118 (72) |
Outpatient clinic | 17 (10) |
Procedural area | 6 (4) |
Another facility | 12 (7) |
Other | 9 (6) |
Patient discharged to, no. (%) | |
Home without services | 107 (66) |
Home with services | 40 (25) |
Home hospice | 2 (1) |
Skilled nursing facility | 8 (5) |
Patient deceased | 3 (2) |
Other | 3 (2) |
Barriers to Discharge Readiness
Patients completed on average 1.82 surveys (SD 1.10; range, 18), and in total 296 surveys were administered. Only 5% of patients were captured on their admission day, whereas 77% of patients were surveyed on their second hospital day (Table 2). Between the first and second survey administration, 51% of patients were lost to follow‐up, and then by the third survey administration a further 37% were lost to follow‐up (Table 3). Patients were unable to be reinterviewed most often because they had been (1) discharged, (2) were unavailable or having a procedure at time of recruitment, or (3) became too sick and symptomatic.
Hospital Day | ||||||||||
---|---|---|---|---|---|---|---|---|---|---|
1 | 2 | 3 | 4 | 5 | 6 | 7 | 8 | 9 | 10 | |
No. of eligible patients hospitalized | 163 | 161 | 138 | 102 | 70 | 50 | 35 | 24 | 19 | 17 |
No. of patients surveyed | 8 | 124 | 70 | 30 | 22 | 13 | 7 | 6 | 2 | 0 |
% of eligible patients surveyed | 4.9 | 77.0 | 50.7 | 29.4 | 31.4 | 26.0 | 20.0 | 25.0 | 10.5 | 0 |
Survey No. | ||||||
---|---|---|---|---|---|---|
1 | 2 | 3 | 4 | 5 | 6+ | |
| ||||||
No. of patients surveyed | 163 | 83 | 31 | 11 | 3 | 5 |
Total barriers (all patients) | 533 | 235 | 84 | 22 | 7 | 8 |
No. of barriers per patient, mean (SD) | 3.27(2.35) | 2.83 (2.11) | 2.71 (2.49) | 2.00 (1.73) | 2.33 (2.51) | 1.60 (2.30) |
Median no. of barriers per patient | 3.0 | 3.0 | 2.0 | 1.0 | 2.0 | 0 |
Median hospital day of survey administration | 2.0 | 3.0 | 5.0 | 6.0 | 8.0 | 13.0 |
Initial admission survey, no. (%) | 163 (100.0) | 0 | 0 | 0 | 0 | 0 |
Follow‐up survey, no. (%) | 0 | 38 (45.8) | 16 (51.6) | 4 (36.4) | 0 | 1 (20.0) |
Survey 48 hours before discharge, no. (%) | 59 (36.2) | 45 (54.2) | 15 (48.4) | 7 (63.6) | 3 (100.0) | 4 (80.0) |
In total, over 889 individual barriers to discharge readiness were reported across all surveys. The total and mean numbers of barriers were highest on the admission intake survey, and numbers continued to decrease until the fourth survey. On average, the total number of barriers to discharge patients reported decreased by 0.15 (95% confidence interval: 0.01‐0.30) per day (P = 0.047).
Change in Barriers to Discharge
Sixty‐eight patients (42%) completed an admission intake survey as well as final survey 48 hours before discharge (Table 4). We observed a significant reduction in mean number of barriers reported between admission and discharge surveys (3.19 vs 2.53, P = 0.01). Sixty‐one patients (90%) left the hospital with 1 or more persistent barrier to a safe discharge. However, the 3 most common barriers to discharge readiness on the admission and final survey remained the same: unresolved pain, lack of understanding of plan for recovery, and daily living activities (eg, cooking, cleaning, and shopping). The number of patients with unresolved pain appeared to increase slightly, though this rise was not statistically significant. In contrast, there were significant reductions in patients reporting they were unaware of problems to watch out for postdischarge (28% vs 16%; P = 0.04) or did not understand their recovery plan (52% vs 40%; P = 0.03).
Barrier to Discharge | Survey | |
---|---|---|
Admission, No. (%) | Final Survey, No. (%) | |
| ||
Catheter is present? | 6 (7.2) | 6 (7.2) |
Not out of bed, sitting in a chair, or walking? | 17 (20.5) | 13 (15.7) |
Pain or discomfort? | 50 (60.2) | 52 (62.7) |
Unable to get to the bathroom for toilet or to shower? | 15 (18.1) | 12 (14.5) |
Unable to self‐care without help from others? | 27 (32.5) | 23 (27.7) |
Unable to get your own medications? | 11 (13.3) | 14 (16.9) |
Know what problems to watch for?* | 23 (27.7) | 13 (15.7) |
Know where to call if you had problems? | 10 (12.0) | 8 (9.6) |
Inability for personal care such as bathing, toileting, and eating? | 8 (9.6) | 11 (13.3) |
Lack of support for emotional needs? | 16 (19.3) | 9 (10.8) |
Unable to cook, clean, or do shopping? | 33 (39.8) | 25 (30.1) |
Do not understand the overall plan for your recovery?* | 43 (51.8) | 33 (39.8) |
DISCUSSION
Assessing discharge readiness highlights an opportunity to engage patients directly in their discharge planning process. However, our prospective study of 163 hospitalized adults revealed that unresolved discharge barriers were common; 90% of patients were discharged with at least 1 issue that might inhibit an effective transition home. The majority of these patients were also discharged home without any support services. In addition, many of the major barriers patients reportedpain, lack of understanding around plans, and ability to provide self‐carewere consistent from admission to discharge, suggesting a missed opportunity to address problems present early in a patient's stay.
Some of the issues our patients described, such as pain; lack of understanding of a recovery plan; and functional, social, and environmental vulnerabilities that impede recovery, have been described in studies using data collected in the postacute time period.[13, 14, 15] Focus on postacute barriers is likely to be of limited clinical utility to assist in any real‐time discharge planning, particularly planning that assesses individual patients' needs and tailors programs and education appropriately. Having said this, consistency between our results and data collected from postdischarge patients again supports broad areas of improvement for health systems.
Persistent gaps in care at discharge may be a result of limited standardization of discharge processes and a lack of engagement in obtaining patient‐reported concerns. Lack of a framework for preparing individual patients for discharge has been recognized as a significant obstacle to effective discharge planning. For example, Hesselink et al.'s qualitative study with almost 200 patients and providers across multiple institutions described how lack of a standard approach to providing discharge planning resulted in gaps in information provision.[16] Similarly, Horwitz et al. described wide variation in discharge practices at a US academic medical center, suggesting lack of a standard approach to identifying patient needs.[14]
Although many transitions of care programs have supported implementation of specific care interventions at a hospital or health system level, there have been surprisingly few studies describing efforts to standardize the assessment of discharge barriers and prospectively engage individual patients.[17] One emblematic study used stakeholder interviews and process mapping to develop a readiness report within their electronic medical record (EMR).[17] Aggregate data from the EMR including orders and discharge plans were coded, extracted, and summarized into a report. The overall goal of the report was to identify progress toward completion of discharge tasks; however, a limitation was that it did not explicitly include patient self‐assessments. Another study by Grimmer et al. describes the development of a patient‐centered discharge checklist that incorporated patients and care concerns.[18] The themes incorporated into this checklist cover many transitional issues; however, outside of the checklist's development, few publications or Web resources describe it in actual use.
Our approach may represent an advance in approaches to engaging patients in discharge planning and preparing patients for leaving the hospital. Although our data do not support efficacy of our daily surveys in terms of improving discharge planning, this initial evaluation provides the framework upon which providers can develop discharge plans that are both standardized in terms of using a structured multidomain communication tool to elicit barriers, as well as patient‐centered and patient‐directed, by using the information collected in the survey tool to initiate tailored discharge planning earlier in the hospital stay. However, our program points out an important limitation of an entirely patient‐initiated program, which is difficulty obtaining truly daily assessments. During this study, we had a single research assistant visit patients as frequently as possible during hospitalization, but even daily visits did not yield complete information on all patients. Although this limitation may in part be due to the fact that our study was a focused pilot of an approach we hope to expand, it also represents the complexity of patient experience in the hospital, where patients are often out of their room for tests, are unable to complete a survey because of problematic symptoms, or simply are unwilling or unable to participate in regular surveys.
Our study has a number of limitations. First, the number of patients in our study overall, and the number who completed at least 2 surveys, was relatively small, limiting the generalizability of the study and our ability to determine the true prevalence of unresolved barriers at discharge. In addition, our selection criteria and response rates have limited our sample in that our final group may not be representative of all patients admitted to our medicine service. The broad exclusion of patients who had physical or psychosocial barriers, and those who were acutely unwell and symptomatic, has the potential to introduce selection bias given the excluded populations are those most at risk of readmission. We also acknowledge that some of the issues that patients' are reporting may be chronic ones. However, given the fact that patients feel these issues, even if chronic, are unaddressed or that they want to talk with their doctor about them, is still a very large potential gap in care and patient engagement.
However, despite these limitations, which seem most likely to produce a cohort that is more likely to be able to participate in our survey, and in turn more likely to participate in their care more broadly, we still observed disappointing resolution of discharge barriers. In addition, our adapted survey instrument, though based on well‐supported conceptual frameworks,[19] has not been extensively tested outside of our hospital setting. Finally, as a single‐center study, our results cannot be generalized to other settings.
Assessing discharge readiness highlights an opportunity to obtain patient self‐reported barriers to discharge. This can facilitate discharge planning that targets individual patient needs. This information also emphasizes potentially fruitful opportunities for improved communication and education activities, potentially if these data are fed back to providers in real time, potentially as part of team‐based dashboards or the context of interdisciplinary team models.
Acknowledgements
The authors thank all of the patients who participated in this project, and Yimdriuska Magan Gigi for her assistance with chart abstractions. The authors also acknowledge and thank John Boscardin for his statistical and analytic support.
Disclosures: James D. Harrison, and Drs. Ryan S. Greysen and Andrew D. Auerbach contributed to the concept, design, analysis, interpretation of data, drafting of the manuscript, critical revisions to the manuscript, and final approval of manuscript. Ronald Jacolbia and Alice Nguyen contributed to the acquisition of data, drafting and final approval of manuscript and project, and administrative and technical support. Dr. Auerbach was supported by National Heart, Lung, and Blood Institute grant K24 K24HL098372. Dr. Greysen is supported by the National Institutes of Health (NIH), National Institute of Aging (NIA) through the Claude D. Pepper Older Americans Independence Center (P30AG021342 NIH/NIA and K23AG045338‐01). The authors have no financial or other conflicts of interest to declare.
- Trends and projections in inpatient hospital costs and utilization 2003–2013. HCUP statistical brief #175. July 2014. Rockville, MD: Agency for Healthcare Research and Quality; 2014. , , .
- Overview of hospital stays in the United States 2012. HCUP statistical brief #180. October 2014. Rockville, MD: Agency for Healthcare Research and Quality; 2014. , .
- Joint Commision. The Joint Commission Comprehensive Accreditation Manual for Hospitals. Oak Brook, IL: The Joint Commission; 2015.
- Hospital discharge and readmission. In: Post TW, ed. UpToDate website: Available at: http://www.uptodate.com/contents/hospital‐discharge‐and‐readmission. Accessed August 14, 2015. , , .
- A patient centered model of care for hospital discharge. Clin Nurse Res. 2004;13:117–136. , .
- Which reasons do doctors, nurses and patients have for hospital discharge? A mixed methods study. PLoS One. 2014;9:e91333. , , , , , .
- Nurse and patient perceptions of discharge readiness in relation to postdischarge utilization. Med Care. 2010;48:482–486. , , .
- Older people's perception of their readiness for discharge and postdischarge use of community support and services. Int J Older People Nurs. 2013;8:104–115. , .
- The care transitions intervention: Results of a randomized controlled trial. Arch Intern Med. 2006;166:1822–1828. , , , .
- Psychometric properties of the Readiness for Hospital Discharge Scale. J Nurs Meas. 2006;14:163–180. , .
- Perceived readiness for hospital discharge in adult medical‐surgical patients. Clin Nurse Spec. 2007;21:31–42. , , , et al.
- Validation of patient and nurse short forms of the Readiness for Hospital Discharge Scale and their relationship to return to the hospital. Health Serv Res. 2014;49:304–317. , , , .
- Missing Pieces”—functional, social and environmental barriers to recovery for vulnerable older adults transitioning from hospital to home. J Am Geriatr Soc. 2014;62:1556–1561. , , , et al. “
- Quality of discharge practices and patient understanding at an academic medical center. JAMA Intern Med. 2013;173:1715–1722. , , , et al.
- Brief scale measuring patient prepardeness for hospital discharge to home: Psychometric properties. J Hosp Med. 2008;3:446–454. , , .
- Improving patient discharge and reducing hospital readmission by using intervention mapping. BMC Health Serv Res. 2014;14:389. , , , et al.
- Development of a discharge readiness report within the electronic health record: a discharge planning tool. J Hosp Med. 2014;9:533–539. , , , , , .
- Incorporating Patient and Carer Concerns in Discharge Plans: The Development of a Practical Patient‐Centred Checklist. The Internet Journal of Allied Health Sciences and Practice. 2006;4: Article 5. , , , .
- Identifying keys to success in reducing readmissions using the ideal transitions in care framework. BMC Health Serv Res. 2014;14:423. , , , .
Thirty‐six million adults were discharged from US hospitals in 2012, with approximately 45% from medicine service lines.[1, 2] Discharge planning, a key aspect of care for hospitalized patients,[3] should involve the development of a plan to enable the patient to be discharged at the appropriate time and with provision of sufficient postdischarge support and services.[4]
Central to the discharge planning process is an assessment of a patient's readiness for discharge. Readiness is often a provider‐driven process, based on specific clinical and health system benchmarks.[5] However, providers' perception of readiness for discharge does not always correlate with patients' self‐assessments or objective measures of understanding.[6] For example, nurses overestimate patients' readiness for discharge compared to patients' own self‐report.[7] As a result, the need to include the patient perspective is increasingly recognized as an important contributing factor in the discharge planning process.[8, 9]
Current approaches to assessing discharge readiness are typically single assessments. However, these assessments do not take into account the complexity of discharge planning or patients' understanding, or their ability to carry out postacute care tasks.[8] In addition, few models have included assessments of physical stability and functional ability along with measures such as ability to manage self‐care activities at home, coping and social support, or access to health system and community resources.[10, 11]
To address these gaps in the existing literature, we carried out a prospective observational study of daily, patient‐reported, assessments of discharge readiness to better understand patients' perspectives on issues that could impede the transition to home. Using these data, we then sought to determine the prevalence of patient‐reported discharge barriers and the frequency with which they were resolved prior to the day of discharge. We also explored whether problems identified at discharge were associated with 30‐day readmission.
METHODS
Study Design, Setting, and Participants
We carried out a prospective observational study at the University of California San Francisco (UCSF) Medical Center, a 600‐bed tertiary care academic hospital in San Francisco, California. The UCSF Committee on Human Research approved this study. We recruited patients between November 2013 and April 2014. Patients were eligible to participate if they were admitted to the General Medicine Service; over 18 years old; English speaking; cognitively able to provide informed consent; and not under contact, droplet, airborne, or radiation isolation. Patients were eligible to participate regardless of where they were admitted from or expected to be discharged (eg, home, skilled nursing facility). Patients were excluded if they were acutely unwell or symptomatic resulting in them being unable to complete the surveys. Caregivers were not able to participate in the study on behalf of patients. We screened daily admission charts for eligibility and approached consecutive patients to consent them into the study on their first or second day of hospitalization. An enrollment tracker was used to documented reasons for patients' exclusion or refusal.
Survey Development
We adapted an existing and validated Readiness for Hospital Discharge Survey (RHDS) previously used in obstetric, surgical, and medicine patients for our study.[10, 11, 12] This initial list was culled from 23 to 12 items, based on input from patients and physicians. This feedback step also prompted a change in the response scale from a 0 to 10 scale to a simpler yes, no, or I would like to talk with someone about this scale intended to encourage discussion between patients and providers. After this revision step, we further pretested the survey among physicians and a small set of general medical patients to assess comprehension. Thus, our final question set included 12 items in 4 domains; personal status (ie, pain, mobility), knowledge (ie, medications, problems to watch for, recovery plan), coping ability (ie, emotional support, who to call with problems), and expected support (ie, related to activities and instrumental activities of daily living).
Data Collection
We collected data from interviews of patients as well as chart abstraction. Trained research assistants approached patients to complete our revised RHDS at admission, which was either on their first or second day of hospitalization. We collected data via an intake admission survey, which asked patients about their readiness for discharge, followed by a daily readiness for discharge survey until the day of discharge. A research assistant read the survey items to patients and recorded responses on a paper version of the survey. We abstracted demographic, clinical, and 30‐day readmission information from each participant's electronic medical record.
Analytic Approach
A barrier to discharge readiness was confirmed when a patient responded no' to an item (except for presence of catheter and pain or discomfort where yes was used) and/or they stated they wanted to talk to someone about the issue. We then used descriptive statistics to summarize patients' responses by survey administration number. Multilevel mixed effect regression was used to investigate any patterns in barriers to discharge over the course of hospitalization. We described the frequency of identified barriers to discharge on the intake admission and final (48 hours of discharge) surveys. McNemar's tests compared the proportion of patients reporting each barrier, and paired t tests the mean number of barriers at these 2 survey time points. We also assessed whether persistent barriers to discharge readiness on the final survey were associated with readmission to our hospital within 30‐days using t tests, 2, or Fisher exact test. Analysis was conducted in SPSS 22.0 (IBM Corp., Armonk, NY) and Stata (StataCorp, College Station, TX).
RESULTS
Patients
There were 2045 patients admitted to the general medicine service during the study period. Medical record screening resulted in 1350 exclusions. Of the remaining 695 patients, 113 refused and 419 were further found to be unable to participate. After all exclusions were applied and following direct screening, 163 patients agreed to participate in our study (Table 1). Mean length of stay among our cohort was 5.42 days (standard deviation [SD], 11.49) and the majority of patients were admitted from and discharged to home (Table 1).
| |
Mean age, y (SD) | 56.4 (17) |
Female gender, no. (%) | 86 (53) |
Race, no. (%) | |
Asian | 13 (8) |
African American | 27 (16) |
White | 96 (59) |
Other | 24 (25) |
Declined to say | 3 (1) |
Married, no. (%) | 78 (48) |
Insurance, no. (%) | |
Medicare | 59 (36) |
Medicaid | 22 (14) |
Private | 73 (45) |
Self‐pay | 2 (1) |
Other | 7 (4) |
Patient admitted from, no. (%) | |
Home | 118 (72) |
Outpatient clinic | 17 (10) |
Procedural area | 6 (4) |
Another facility | 12 (7) |
Other | 9 (6) |
Patient discharged to, no. (%) | |
Home without services | 107 (66) |
Home with services | 40 (25) |
Home hospice | 2 (1) |
Skilled nursing facility | 8 (5) |
Patient deceased | 3 (2) |
Other | 3 (2) |
Barriers to Discharge Readiness
Patients completed on average 1.82 surveys (SD 1.10; range, 18), and in total 296 surveys were administered. Only 5% of patients were captured on their admission day, whereas 77% of patients were surveyed on their second hospital day (Table 2). Between the first and second survey administration, 51% of patients were lost to follow‐up, and then by the third survey administration a further 37% were lost to follow‐up (Table 3). Patients were unable to be reinterviewed most often because they had been (1) discharged, (2) were unavailable or having a procedure at time of recruitment, or (3) became too sick and symptomatic.
Hospital Day | ||||||||||
---|---|---|---|---|---|---|---|---|---|---|
1 | 2 | 3 | 4 | 5 | 6 | 7 | 8 | 9 | 10 | |
No. of eligible patients hospitalized | 163 | 161 | 138 | 102 | 70 | 50 | 35 | 24 | 19 | 17 |
No. of patients surveyed | 8 | 124 | 70 | 30 | 22 | 13 | 7 | 6 | 2 | 0 |
% of eligible patients surveyed | 4.9 | 77.0 | 50.7 | 29.4 | 31.4 | 26.0 | 20.0 | 25.0 | 10.5 | 0 |
Survey No. | ||||||
---|---|---|---|---|---|---|
1 | 2 | 3 | 4 | 5 | 6+ | |
| ||||||
No. of patients surveyed | 163 | 83 | 31 | 11 | 3 | 5 |
Total barriers (all patients) | 533 | 235 | 84 | 22 | 7 | 8 |
No. of barriers per patient, mean (SD) | 3.27(2.35) | 2.83 (2.11) | 2.71 (2.49) | 2.00 (1.73) | 2.33 (2.51) | 1.60 (2.30) |
Median no. of barriers per patient | 3.0 | 3.0 | 2.0 | 1.0 | 2.0 | 0 |
Median hospital day of survey administration | 2.0 | 3.0 | 5.0 | 6.0 | 8.0 | 13.0 |
Initial admission survey, no. (%) | 163 (100.0) | 0 | 0 | 0 | 0 | 0 |
Follow‐up survey, no. (%) | 0 | 38 (45.8) | 16 (51.6) | 4 (36.4) | 0 | 1 (20.0) |
Survey 48 hours before discharge, no. (%) | 59 (36.2) | 45 (54.2) | 15 (48.4) | 7 (63.6) | 3 (100.0) | 4 (80.0) |
In total, over 889 individual barriers to discharge readiness were reported across all surveys. The total and mean numbers of barriers were highest on the admission intake survey, and numbers continued to decrease until the fourth survey. On average, the total number of barriers to discharge patients reported decreased by 0.15 (95% confidence interval: 0.01‐0.30) per day (P = 0.047).
Change in Barriers to Discharge
Sixty‐eight patients (42%) completed an admission intake survey as well as final survey 48 hours before discharge (Table 4). We observed a significant reduction in mean number of barriers reported between admission and discharge surveys (3.19 vs 2.53, P = 0.01). Sixty‐one patients (90%) left the hospital with 1 or more persistent barrier to a safe discharge. However, the 3 most common barriers to discharge readiness on the admission and final survey remained the same: unresolved pain, lack of understanding of plan for recovery, and daily living activities (eg, cooking, cleaning, and shopping). The number of patients with unresolved pain appeared to increase slightly, though this rise was not statistically significant. In contrast, there were significant reductions in patients reporting they were unaware of problems to watch out for postdischarge (28% vs 16%; P = 0.04) or did not understand their recovery plan (52% vs 40%; P = 0.03).
Barrier to Discharge | Survey | |
---|---|---|
Admission, No. (%) | Final Survey, No. (%) | |
| ||
Catheter is present? | 6 (7.2) | 6 (7.2) |
Not out of bed, sitting in a chair, or walking? | 17 (20.5) | 13 (15.7) |
Pain or discomfort? | 50 (60.2) | 52 (62.7) |
Unable to get to the bathroom for toilet or to shower? | 15 (18.1) | 12 (14.5) |
Unable to self‐care without help from others? | 27 (32.5) | 23 (27.7) |
Unable to get your own medications? | 11 (13.3) | 14 (16.9) |
Know what problems to watch for?* | 23 (27.7) | 13 (15.7) |
Know where to call if you had problems? | 10 (12.0) | 8 (9.6) |
Inability for personal care such as bathing, toileting, and eating? | 8 (9.6) | 11 (13.3) |
Lack of support for emotional needs? | 16 (19.3) | 9 (10.8) |
Unable to cook, clean, or do shopping? | 33 (39.8) | 25 (30.1) |
Do not understand the overall plan for your recovery?* | 43 (51.8) | 33 (39.8) |
DISCUSSION
Assessing discharge readiness highlights an opportunity to engage patients directly in their discharge planning process. However, our prospective study of 163 hospitalized adults revealed that unresolved discharge barriers were common; 90% of patients were discharged with at least 1 issue that might inhibit an effective transition home. The majority of these patients were also discharged home without any support services. In addition, many of the major barriers patients reportedpain, lack of understanding around plans, and ability to provide self‐carewere consistent from admission to discharge, suggesting a missed opportunity to address problems present early in a patient's stay.
Some of the issues our patients described, such as pain; lack of understanding of a recovery plan; and functional, social, and environmental vulnerabilities that impede recovery, have been described in studies using data collected in the postacute time period.[13, 14, 15] Focus on postacute barriers is likely to be of limited clinical utility to assist in any real‐time discharge planning, particularly planning that assesses individual patients' needs and tailors programs and education appropriately. Having said this, consistency between our results and data collected from postdischarge patients again supports broad areas of improvement for health systems.
Persistent gaps in care at discharge may be a result of limited standardization of discharge processes and a lack of engagement in obtaining patient‐reported concerns. Lack of a framework for preparing individual patients for discharge has been recognized as a significant obstacle to effective discharge planning. For example, Hesselink et al.'s qualitative study with almost 200 patients and providers across multiple institutions described how lack of a standard approach to providing discharge planning resulted in gaps in information provision.[16] Similarly, Horwitz et al. described wide variation in discharge practices at a US academic medical center, suggesting lack of a standard approach to identifying patient needs.[14]
Although many transitions of care programs have supported implementation of specific care interventions at a hospital or health system level, there have been surprisingly few studies describing efforts to standardize the assessment of discharge barriers and prospectively engage individual patients.[17] One emblematic study used stakeholder interviews and process mapping to develop a readiness report within their electronic medical record (EMR).[17] Aggregate data from the EMR including orders and discharge plans were coded, extracted, and summarized into a report. The overall goal of the report was to identify progress toward completion of discharge tasks; however, a limitation was that it did not explicitly include patient self‐assessments. Another study by Grimmer et al. describes the development of a patient‐centered discharge checklist that incorporated patients and care concerns.[18] The themes incorporated into this checklist cover many transitional issues; however, outside of the checklist's development, few publications or Web resources describe it in actual use.
Our approach may represent an advance in approaches to engaging patients in discharge planning and preparing patients for leaving the hospital. Although our data do not support efficacy of our daily surveys in terms of improving discharge planning, this initial evaluation provides the framework upon which providers can develop discharge plans that are both standardized in terms of using a structured multidomain communication tool to elicit barriers, as well as patient‐centered and patient‐directed, by using the information collected in the survey tool to initiate tailored discharge planning earlier in the hospital stay. However, our program points out an important limitation of an entirely patient‐initiated program, which is difficulty obtaining truly daily assessments. During this study, we had a single research assistant visit patients as frequently as possible during hospitalization, but even daily visits did not yield complete information on all patients. Although this limitation may in part be due to the fact that our study was a focused pilot of an approach we hope to expand, it also represents the complexity of patient experience in the hospital, where patients are often out of their room for tests, are unable to complete a survey because of problematic symptoms, or simply are unwilling or unable to participate in regular surveys.
Our study has a number of limitations. First, the number of patients in our study overall, and the number who completed at least 2 surveys, was relatively small, limiting the generalizability of the study and our ability to determine the true prevalence of unresolved barriers at discharge. In addition, our selection criteria and response rates have limited our sample in that our final group may not be representative of all patients admitted to our medicine service. The broad exclusion of patients who had physical or psychosocial barriers, and those who were acutely unwell and symptomatic, has the potential to introduce selection bias given the excluded populations are those most at risk of readmission. We also acknowledge that some of the issues that patients' are reporting may be chronic ones. However, given the fact that patients feel these issues, even if chronic, are unaddressed or that they want to talk with their doctor about them, is still a very large potential gap in care and patient engagement.
However, despite these limitations, which seem most likely to produce a cohort that is more likely to be able to participate in our survey, and in turn more likely to participate in their care more broadly, we still observed disappointing resolution of discharge barriers. In addition, our adapted survey instrument, though based on well‐supported conceptual frameworks,[19] has not been extensively tested outside of our hospital setting. Finally, as a single‐center study, our results cannot be generalized to other settings.
Assessing discharge readiness highlights an opportunity to obtain patient self‐reported barriers to discharge. This can facilitate discharge planning that targets individual patient needs. This information also emphasizes potentially fruitful opportunities for improved communication and education activities, potentially if these data are fed back to providers in real time, potentially as part of team‐based dashboards or the context of interdisciplinary team models.
Acknowledgements
The authors thank all of the patients who participated in this project, and Yimdriuska Magan Gigi for her assistance with chart abstractions. The authors also acknowledge and thank John Boscardin for his statistical and analytic support.
Disclosures: James D. Harrison, and Drs. Ryan S. Greysen and Andrew D. Auerbach contributed to the concept, design, analysis, interpretation of data, drafting of the manuscript, critical revisions to the manuscript, and final approval of manuscript. Ronald Jacolbia and Alice Nguyen contributed to the acquisition of data, drafting and final approval of manuscript and project, and administrative and technical support. Dr. Auerbach was supported by National Heart, Lung, and Blood Institute grant K24 K24HL098372. Dr. Greysen is supported by the National Institutes of Health (NIH), National Institute of Aging (NIA) through the Claude D. Pepper Older Americans Independence Center (P30AG021342 NIH/NIA and K23AG045338‐01). The authors have no financial or other conflicts of interest to declare.
Thirty‐six million adults were discharged from US hospitals in 2012, with approximately 45% from medicine service lines.[1, 2] Discharge planning, a key aspect of care for hospitalized patients,[3] should involve the development of a plan to enable the patient to be discharged at the appropriate time and with provision of sufficient postdischarge support and services.[4]
Central to the discharge planning process is an assessment of a patient's readiness for discharge. Readiness is often a provider‐driven process, based on specific clinical and health system benchmarks.[5] However, providers' perception of readiness for discharge does not always correlate with patients' self‐assessments or objective measures of understanding.[6] For example, nurses overestimate patients' readiness for discharge compared to patients' own self‐report.[7] As a result, the need to include the patient perspective is increasingly recognized as an important contributing factor in the discharge planning process.[8, 9]
Current approaches to assessing discharge readiness are typically single assessments. However, these assessments do not take into account the complexity of discharge planning or patients' understanding, or their ability to carry out postacute care tasks.[8] In addition, few models have included assessments of physical stability and functional ability along with measures such as ability to manage self‐care activities at home, coping and social support, or access to health system and community resources.[10, 11]
To address these gaps in the existing literature, we carried out a prospective observational study of daily, patient‐reported, assessments of discharge readiness to better understand patients' perspectives on issues that could impede the transition to home. Using these data, we then sought to determine the prevalence of patient‐reported discharge barriers and the frequency with which they were resolved prior to the day of discharge. We also explored whether problems identified at discharge were associated with 30‐day readmission.
METHODS
Study Design, Setting, and Participants
We carried out a prospective observational study at the University of California San Francisco (UCSF) Medical Center, a 600‐bed tertiary care academic hospital in San Francisco, California. The UCSF Committee on Human Research approved this study. We recruited patients between November 2013 and April 2014. Patients were eligible to participate if they were admitted to the General Medicine Service; over 18 years old; English speaking; cognitively able to provide informed consent; and not under contact, droplet, airborne, or radiation isolation. Patients were eligible to participate regardless of where they were admitted from or expected to be discharged (eg, home, skilled nursing facility). Patients were excluded if they were acutely unwell or symptomatic resulting in them being unable to complete the surveys. Caregivers were not able to participate in the study on behalf of patients. We screened daily admission charts for eligibility and approached consecutive patients to consent them into the study on their first or second day of hospitalization. An enrollment tracker was used to documented reasons for patients' exclusion or refusal.
Survey Development
We adapted an existing and validated Readiness for Hospital Discharge Survey (RHDS) previously used in obstetric, surgical, and medicine patients for our study.[10, 11, 12] This initial list was culled from 23 to 12 items, based on input from patients and physicians. This feedback step also prompted a change in the response scale from a 0 to 10 scale to a simpler yes, no, or I would like to talk with someone about this scale intended to encourage discussion between patients and providers. After this revision step, we further pretested the survey among physicians and a small set of general medical patients to assess comprehension. Thus, our final question set included 12 items in 4 domains; personal status (ie, pain, mobility), knowledge (ie, medications, problems to watch for, recovery plan), coping ability (ie, emotional support, who to call with problems), and expected support (ie, related to activities and instrumental activities of daily living).
Data Collection
We collected data from interviews of patients as well as chart abstraction. Trained research assistants approached patients to complete our revised RHDS at admission, which was either on their first or second day of hospitalization. We collected data via an intake admission survey, which asked patients about their readiness for discharge, followed by a daily readiness for discharge survey until the day of discharge. A research assistant read the survey items to patients and recorded responses on a paper version of the survey. We abstracted demographic, clinical, and 30‐day readmission information from each participant's electronic medical record.
Analytic Approach
A barrier to discharge readiness was confirmed when a patient responded no' to an item (except for presence of catheter and pain or discomfort where yes was used) and/or they stated they wanted to talk to someone about the issue. We then used descriptive statistics to summarize patients' responses by survey administration number. Multilevel mixed effect regression was used to investigate any patterns in barriers to discharge over the course of hospitalization. We described the frequency of identified barriers to discharge on the intake admission and final (48 hours of discharge) surveys. McNemar's tests compared the proportion of patients reporting each barrier, and paired t tests the mean number of barriers at these 2 survey time points. We also assessed whether persistent barriers to discharge readiness on the final survey were associated with readmission to our hospital within 30‐days using t tests, 2, or Fisher exact test. Analysis was conducted in SPSS 22.0 (IBM Corp., Armonk, NY) and Stata (StataCorp, College Station, TX).
RESULTS
Patients
There were 2045 patients admitted to the general medicine service during the study period. Medical record screening resulted in 1350 exclusions. Of the remaining 695 patients, 113 refused and 419 were further found to be unable to participate. After all exclusions were applied and following direct screening, 163 patients agreed to participate in our study (Table 1). Mean length of stay among our cohort was 5.42 days (standard deviation [SD], 11.49) and the majority of patients were admitted from and discharged to home (Table 1).
| |
Mean age, y (SD) | 56.4 (17) |
Female gender, no. (%) | 86 (53) |
Race, no. (%) | |
Asian | 13 (8) |
African American | 27 (16) |
White | 96 (59) |
Other | 24 (25) |
Declined to say | 3 (1) |
Married, no. (%) | 78 (48) |
Insurance, no. (%) | |
Medicare | 59 (36) |
Medicaid | 22 (14) |
Private | 73 (45) |
Self‐pay | 2 (1) |
Other | 7 (4) |
Patient admitted from, no. (%) | |
Home | 118 (72) |
Outpatient clinic | 17 (10) |
Procedural area | 6 (4) |
Another facility | 12 (7) |
Other | 9 (6) |
Patient discharged to, no. (%) | |
Home without services | 107 (66) |
Home with services | 40 (25) |
Home hospice | 2 (1) |
Skilled nursing facility | 8 (5) |
Patient deceased | 3 (2) |
Other | 3 (2) |
Barriers to Discharge Readiness
Patients completed on average 1.82 surveys (SD 1.10; range, 18), and in total 296 surveys were administered. Only 5% of patients were captured on their admission day, whereas 77% of patients were surveyed on their second hospital day (Table 2). Between the first and second survey administration, 51% of patients were lost to follow‐up, and then by the third survey administration a further 37% were lost to follow‐up (Table 3). Patients were unable to be reinterviewed most often because they had been (1) discharged, (2) were unavailable or having a procedure at time of recruitment, or (3) became too sick and symptomatic.
Hospital Day | ||||||||||
---|---|---|---|---|---|---|---|---|---|---|
1 | 2 | 3 | 4 | 5 | 6 | 7 | 8 | 9 | 10 | |
No. of eligible patients hospitalized | 163 | 161 | 138 | 102 | 70 | 50 | 35 | 24 | 19 | 17 |
No. of patients surveyed | 8 | 124 | 70 | 30 | 22 | 13 | 7 | 6 | 2 | 0 |
% of eligible patients surveyed | 4.9 | 77.0 | 50.7 | 29.4 | 31.4 | 26.0 | 20.0 | 25.0 | 10.5 | 0 |
Survey No. | ||||||
---|---|---|---|---|---|---|
1 | 2 | 3 | 4 | 5 | 6+ | |
| ||||||
No. of patients surveyed | 163 | 83 | 31 | 11 | 3 | 5 |
Total barriers (all patients) | 533 | 235 | 84 | 22 | 7 | 8 |
No. of barriers per patient, mean (SD) | 3.27(2.35) | 2.83 (2.11) | 2.71 (2.49) | 2.00 (1.73) | 2.33 (2.51) | 1.60 (2.30) |
Median no. of barriers per patient | 3.0 | 3.0 | 2.0 | 1.0 | 2.0 | 0 |
Median hospital day of survey administration | 2.0 | 3.0 | 5.0 | 6.0 | 8.0 | 13.0 |
Initial admission survey, no. (%) | 163 (100.0) | 0 | 0 | 0 | 0 | 0 |
Follow‐up survey, no. (%) | 0 | 38 (45.8) | 16 (51.6) | 4 (36.4) | 0 | 1 (20.0) |
Survey 48 hours before discharge, no. (%) | 59 (36.2) | 45 (54.2) | 15 (48.4) | 7 (63.6) | 3 (100.0) | 4 (80.0) |
In total, over 889 individual barriers to discharge readiness were reported across all surveys. The total and mean numbers of barriers were highest on the admission intake survey, and numbers continued to decrease until the fourth survey. On average, the total number of barriers to discharge patients reported decreased by 0.15 (95% confidence interval: 0.01‐0.30) per day (P = 0.047).
Change in Barriers to Discharge
Sixty‐eight patients (42%) completed an admission intake survey as well as final survey 48 hours before discharge (Table 4). We observed a significant reduction in mean number of barriers reported between admission and discharge surveys (3.19 vs 2.53, P = 0.01). Sixty‐one patients (90%) left the hospital with 1 or more persistent barrier to a safe discharge. However, the 3 most common barriers to discharge readiness on the admission and final survey remained the same: unresolved pain, lack of understanding of plan for recovery, and daily living activities (eg, cooking, cleaning, and shopping). The number of patients with unresolved pain appeared to increase slightly, though this rise was not statistically significant. In contrast, there were significant reductions in patients reporting they were unaware of problems to watch out for postdischarge (28% vs 16%; P = 0.04) or did not understand their recovery plan (52% vs 40%; P = 0.03).
Barrier to Discharge | Survey | |
---|---|---|
Admission, No. (%) | Final Survey, No. (%) | |
| ||
Catheter is present? | 6 (7.2) | 6 (7.2) |
Not out of bed, sitting in a chair, or walking? | 17 (20.5) | 13 (15.7) |
Pain or discomfort? | 50 (60.2) | 52 (62.7) |
Unable to get to the bathroom for toilet or to shower? | 15 (18.1) | 12 (14.5) |
Unable to self‐care without help from others? | 27 (32.5) | 23 (27.7) |
Unable to get your own medications? | 11 (13.3) | 14 (16.9) |
Know what problems to watch for?* | 23 (27.7) | 13 (15.7) |
Know where to call if you had problems? | 10 (12.0) | 8 (9.6) |
Inability for personal care such as bathing, toileting, and eating? | 8 (9.6) | 11 (13.3) |
Lack of support for emotional needs? | 16 (19.3) | 9 (10.8) |
Unable to cook, clean, or do shopping? | 33 (39.8) | 25 (30.1) |
Do not understand the overall plan for your recovery?* | 43 (51.8) | 33 (39.8) |
DISCUSSION
Assessing discharge readiness highlights an opportunity to engage patients directly in their discharge planning process. However, our prospective study of 163 hospitalized adults revealed that unresolved discharge barriers were common; 90% of patients were discharged with at least 1 issue that might inhibit an effective transition home. The majority of these patients were also discharged home without any support services. In addition, many of the major barriers patients reportedpain, lack of understanding around plans, and ability to provide self‐carewere consistent from admission to discharge, suggesting a missed opportunity to address problems present early in a patient's stay.
Some of the issues our patients described, such as pain; lack of understanding of a recovery plan; and functional, social, and environmental vulnerabilities that impede recovery, have been described in studies using data collected in the postacute time period.[13, 14, 15] Focus on postacute barriers is likely to be of limited clinical utility to assist in any real‐time discharge planning, particularly planning that assesses individual patients' needs and tailors programs and education appropriately. Having said this, consistency between our results and data collected from postdischarge patients again supports broad areas of improvement for health systems.
Persistent gaps in care at discharge may be a result of limited standardization of discharge processes and a lack of engagement in obtaining patient‐reported concerns. Lack of a framework for preparing individual patients for discharge has been recognized as a significant obstacle to effective discharge planning. For example, Hesselink et al.'s qualitative study with almost 200 patients and providers across multiple institutions described how lack of a standard approach to providing discharge planning resulted in gaps in information provision.[16] Similarly, Horwitz et al. described wide variation in discharge practices at a US academic medical center, suggesting lack of a standard approach to identifying patient needs.[14]
Although many transitions of care programs have supported implementation of specific care interventions at a hospital or health system level, there have been surprisingly few studies describing efforts to standardize the assessment of discharge barriers and prospectively engage individual patients.[17] One emblematic study used stakeholder interviews and process mapping to develop a readiness report within their electronic medical record (EMR).[17] Aggregate data from the EMR including orders and discharge plans were coded, extracted, and summarized into a report. The overall goal of the report was to identify progress toward completion of discharge tasks; however, a limitation was that it did not explicitly include patient self‐assessments. Another study by Grimmer et al. describes the development of a patient‐centered discharge checklist that incorporated patients and care concerns.[18] The themes incorporated into this checklist cover many transitional issues; however, outside of the checklist's development, few publications or Web resources describe it in actual use.
Our approach may represent an advance in approaches to engaging patients in discharge planning and preparing patients for leaving the hospital. Although our data do not support efficacy of our daily surveys in terms of improving discharge planning, this initial evaluation provides the framework upon which providers can develop discharge plans that are both standardized in terms of using a structured multidomain communication tool to elicit barriers, as well as patient‐centered and patient‐directed, by using the information collected in the survey tool to initiate tailored discharge planning earlier in the hospital stay. However, our program points out an important limitation of an entirely patient‐initiated program, which is difficulty obtaining truly daily assessments. During this study, we had a single research assistant visit patients as frequently as possible during hospitalization, but even daily visits did not yield complete information on all patients. Although this limitation may in part be due to the fact that our study was a focused pilot of an approach we hope to expand, it also represents the complexity of patient experience in the hospital, where patients are often out of their room for tests, are unable to complete a survey because of problematic symptoms, or simply are unwilling or unable to participate in regular surveys.
Our study has a number of limitations. First, the number of patients in our study overall, and the number who completed at least 2 surveys, was relatively small, limiting the generalizability of the study and our ability to determine the true prevalence of unresolved barriers at discharge. In addition, our selection criteria and response rates have limited our sample in that our final group may not be representative of all patients admitted to our medicine service. The broad exclusion of patients who had physical or psychosocial barriers, and those who were acutely unwell and symptomatic, has the potential to introduce selection bias given the excluded populations are those most at risk of readmission. We also acknowledge that some of the issues that patients' are reporting may be chronic ones. However, given the fact that patients feel these issues, even if chronic, are unaddressed or that they want to talk with their doctor about them, is still a very large potential gap in care and patient engagement.
However, despite these limitations, which seem most likely to produce a cohort that is more likely to be able to participate in our survey, and in turn more likely to participate in their care more broadly, we still observed disappointing resolution of discharge barriers. In addition, our adapted survey instrument, though based on well‐supported conceptual frameworks,[19] has not been extensively tested outside of our hospital setting. Finally, as a single‐center study, our results cannot be generalized to other settings.
Assessing discharge readiness highlights an opportunity to obtain patient self‐reported barriers to discharge. This can facilitate discharge planning that targets individual patient needs. This information also emphasizes potentially fruitful opportunities for improved communication and education activities, potentially if these data are fed back to providers in real time, potentially as part of team‐based dashboards or the context of interdisciplinary team models.
Acknowledgements
The authors thank all of the patients who participated in this project, and Yimdriuska Magan Gigi for her assistance with chart abstractions. The authors also acknowledge and thank John Boscardin for his statistical and analytic support.
Disclosures: James D. Harrison, and Drs. Ryan S. Greysen and Andrew D. Auerbach contributed to the concept, design, analysis, interpretation of data, drafting of the manuscript, critical revisions to the manuscript, and final approval of manuscript. Ronald Jacolbia and Alice Nguyen contributed to the acquisition of data, drafting and final approval of manuscript and project, and administrative and technical support. Dr. Auerbach was supported by National Heart, Lung, and Blood Institute grant K24 K24HL098372. Dr. Greysen is supported by the National Institutes of Health (NIH), National Institute of Aging (NIA) through the Claude D. Pepper Older Americans Independence Center (P30AG021342 NIH/NIA and K23AG045338‐01). The authors have no financial or other conflicts of interest to declare.
- Trends and projections in inpatient hospital costs and utilization 2003–2013. HCUP statistical brief #175. July 2014. Rockville, MD: Agency for Healthcare Research and Quality; 2014. , , .
- Overview of hospital stays in the United States 2012. HCUP statistical brief #180. October 2014. Rockville, MD: Agency for Healthcare Research and Quality; 2014. , .
- Joint Commision. The Joint Commission Comprehensive Accreditation Manual for Hospitals. Oak Brook, IL: The Joint Commission; 2015.
- Hospital discharge and readmission. In: Post TW, ed. UpToDate website: Available at: http://www.uptodate.com/contents/hospital‐discharge‐and‐readmission. Accessed August 14, 2015. , , .
- A patient centered model of care for hospital discharge. Clin Nurse Res. 2004;13:117–136. , .
- Which reasons do doctors, nurses and patients have for hospital discharge? A mixed methods study. PLoS One. 2014;9:e91333. , , , , , .
- Nurse and patient perceptions of discharge readiness in relation to postdischarge utilization. Med Care. 2010;48:482–486. , , .
- Older people's perception of their readiness for discharge and postdischarge use of community support and services. Int J Older People Nurs. 2013;8:104–115. , .
- The care transitions intervention: Results of a randomized controlled trial. Arch Intern Med. 2006;166:1822–1828. , , , .
- Psychometric properties of the Readiness for Hospital Discharge Scale. J Nurs Meas. 2006;14:163–180. , .
- Perceived readiness for hospital discharge in adult medical‐surgical patients. Clin Nurse Spec. 2007;21:31–42. , , , et al.
- Validation of patient and nurse short forms of the Readiness for Hospital Discharge Scale and their relationship to return to the hospital. Health Serv Res. 2014;49:304–317. , , , .
- Missing Pieces”—functional, social and environmental barriers to recovery for vulnerable older adults transitioning from hospital to home. J Am Geriatr Soc. 2014;62:1556–1561. , , , et al. “
- Quality of discharge practices and patient understanding at an academic medical center. JAMA Intern Med. 2013;173:1715–1722. , , , et al.
- Brief scale measuring patient prepardeness for hospital discharge to home: Psychometric properties. J Hosp Med. 2008;3:446–454. , , .
- Improving patient discharge and reducing hospital readmission by using intervention mapping. BMC Health Serv Res. 2014;14:389. , , , et al.
- Development of a discharge readiness report within the electronic health record: a discharge planning tool. J Hosp Med. 2014;9:533–539. , , , , , .
- Incorporating Patient and Carer Concerns in Discharge Plans: The Development of a Practical Patient‐Centred Checklist. The Internet Journal of Allied Health Sciences and Practice. 2006;4: Article 5. , , , .
- Identifying keys to success in reducing readmissions using the ideal transitions in care framework. BMC Health Serv Res. 2014;14:423. , , , .
- Trends and projections in inpatient hospital costs and utilization 2003–2013. HCUP statistical brief #175. July 2014. Rockville, MD: Agency for Healthcare Research and Quality; 2014. , , .
- Overview of hospital stays in the United States 2012. HCUP statistical brief #180. October 2014. Rockville, MD: Agency for Healthcare Research and Quality; 2014. , .
- Joint Commision. The Joint Commission Comprehensive Accreditation Manual for Hospitals. Oak Brook, IL: The Joint Commission; 2015.
- Hospital discharge and readmission. In: Post TW, ed. UpToDate website: Available at: http://www.uptodate.com/contents/hospital‐discharge‐and‐readmission. Accessed August 14, 2015. , , .
- A patient centered model of care for hospital discharge. Clin Nurse Res. 2004;13:117–136. , .
- Which reasons do doctors, nurses and patients have for hospital discharge? A mixed methods study. PLoS One. 2014;9:e91333. , , , , , .
- Nurse and patient perceptions of discharge readiness in relation to postdischarge utilization. Med Care. 2010;48:482–486. , , .
- Older people's perception of their readiness for discharge and postdischarge use of community support and services. Int J Older People Nurs. 2013;8:104–115. , .
- The care transitions intervention: Results of a randomized controlled trial. Arch Intern Med. 2006;166:1822–1828. , , , .
- Psychometric properties of the Readiness for Hospital Discharge Scale. J Nurs Meas. 2006;14:163–180. , .
- Perceived readiness for hospital discharge in adult medical‐surgical patients. Clin Nurse Spec. 2007;21:31–42. , , , et al.
- Validation of patient and nurse short forms of the Readiness for Hospital Discharge Scale and their relationship to return to the hospital. Health Serv Res. 2014;49:304–317. , , , .
- Missing Pieces”—functional, social and environmental barriers to recovery for vulnerable older adults transitioning from hospital to home. J Am Geriatr Soc. 2014;62:1556–1561. , , , et al. “
- Quality of discharge practices and patient understanding at an academic medical center. JAMA Intern Med. 2013;173:1715–1722. , , , et al.
- Brief scale measuring patient prepardeness for hospital discharge to home: Psychometric properties. J Hosp Med. 2008;3:446–454. , , .
- Improving patient discharge and reducing hospital readmission by using intervention mapping. BMC Health Serv Res. 2014;14:389. , , , et al.
- Development of a discharge readiness report within the electronic health record: a discharge planning tool. J Hosp Med. 2014;9:533–539. , , , , , .
- Incorporating Patient and Carer Concerns in Discharge Plans: The Development of a Practical Patient‐Centred Checklist. The Internet Journal of Allied Health Sciences and Practice. 2006;4: Article 5. , , , .
- Identifying keys to success in reducing readmissions using the ideal transitions in care framework. BMC Health Serv Res. 2014;14:423. , , , .
Tablet Computers to Engage Patients
BACKGROUND
Many hospitals have initiated intense efforts to improve transitions of care[1] such as discharge coordinators or transition coaches,[2, 3] but use of mobile devices as approaches to add or extend the value of human interventions have been understudied.[4] Additionally, many hospitalized patients experience substantial inactive time between provider visits, tests, and treatments. This time could be used to engage patients in their care through interactive health education modules and by learning to use their PHR to manage medications and postdischarge appointments.
Greater understanding of the advantages and limitations of mobile devices may be important for improving transitions of care and may help leverage existing hospital personnel resources. However, prior studies have focused on healthcare provider uses of tablet computers for medical education,[5] to collect clinical registration data,[6] or to do clinical work (eg, check labs, write notes)[7, 8, 9] primarily in outpatient settings; few studies have focused on patient uses for this technology in hospital settings.[10, 11] To address these knowledge gaps, we conducted a pilot project to explore inpatient satisfaction with bedside tablets and barriers to usability. Additionally, we evaluated use of these devices to deliver 2 specific Web‐based programs: (1) an interactive video to improve inpatient education about hospital safety, and (2) PHR access to promote inpatient engagement in discharge planning.
METHODS
Study Design, Patient Selection, and Devices/Programs
We conducted a prospective study of tablet computers to engage patients in their care and discharge planning through Web‐based interactive health education modules and use of PHRs. We used 2 tablets, distributed daily by research assistants (RAs) to eligible patients after morning rounds. Inclusion criteria for patients were ability to speak English and admission to the medical (hospitalist) service at University of California San Francisco (UCSF) Medical Center. Exclusion criteria were intensive care unit admission, contact isolation, or inability to complete the consent process due to altered mental status or cognitive impairment.
RAs screened patients for inclusion/exclusion via the electronic medical record and then approached them after rounds for enrollment (11:00 am1:00 pm). RAs then performed a tiered orientation tailored to individual patient experience and needs. First, they delivered a brief tutorial focused on the tablet itself and its basic functions (touchscreen, keypad, and Internet browser use). Second, RAs showed patients how to access the online educational health module and how to navigate content within the module. RAs next explained what the PHR is and demonstrated how to login, how to navigate tabs within the PHR, and how to perform basic tasks (view/refill medications, view/modify appointments, and view/send messages to providers). The RAs left devices with patients for 3 to 5 hours and returned to collect them and perform debriefing interviews. After each device was returned, RAs cleaned devices with disinfectant wipes available in patient rooms and checked for physical damage or software malfunctions (eg, unable to turn on or unlock). Finally, RAs used the reset function to erase any personal data or setting modifications made by patients and docked the devices overnight to resynchronize the original settings and recharge the batteries.
We used the 16 gigabyte Apple iPad2 (Apple Inc., Cupertino, CA) without any enclosures, cases, or security devices. Our educational health module was Patient Safety in the Hospital, which was professionally developed by Emmi Solutions (
Survey Instruments and Data Collection
We developed pre‐ and postintervention surveys to characterize patients' demographics, device ownership, and health‐related Internet activities in the last year based on questions used in the Centers for Disease Control and Prevention National Health Interview Study (
Analyses
We used frequency analysis to describe patient demographics, ability to complete online health educational modules, and utilization of their PHR. We performed bivariate analyses (Fisher exact test) to assess correlations between demographics (age, device ownership, Internet use) and key pilot program performance measures (orientation time 15 minutes, online health module completion, and completion of 1 essential function in the PHR). All analyses were performed in SAS 9.2 (SAS Institute Inc., Cary, NC). The institutional review board of record for UCSF approved this study.
RESULTS
As shown in Table 1, we enrolled 30 patients. Most participants (60%) were aged 40 years or older, and most (87%) owned a mobile device; 70% owned a laptop and 60% owned a smartphone, but few (22%) owned a computer tablet. Most participants accessed the Internet daily, but fewer reported Internet use for health tasks; about half (52%) communicated with a provider, but few refilled a prescription (27%) or scheduled an appointment (21%) online over the last year.
Characteristic | No. (%) |
---|---|
Age, y | |
1839 | 11 (38%) |
4049 | 5 (18%) |
5059 | 4 (14%) |
6069 | 5 (18%) |
7079 | 3 (10%) |
Gender, female | 17 (60%) |
Device ownership | |
Desktop computer | 12 (44%) |
Laptop computer | 19 (70%) |
Smart phone | 17 (60%) |
Tablet computer | 6 (22%) |
Any mobile device (laptop, smartphone, or tablet) | 26 (87%) |
Internet use | |
Daily | 21 (72%) |
Several times a week | 3 (10%) |
Once a week or less | 5 (18%) |
Prestudy online health tasks | |
Looked up health information | 21 (72%) |
Communicated with provider | 15 (52%) |
Refilled prescription | 8 (27%) |
Scheduled medical appointment | 6 (21%) |
Nearly all participants (90%) were satisfied or very satisfied with their experience using the tablet in the hospital (Figure 1). Most (87%) required 30 minutes or less for basic orientation, and 70% required only 15 minutes or less. Most participants (83%) were able to independently complete an interactive health education module on hospital safety and were highly satisfied with the module. Despite the fact that 73% of participants were first‐time users of our PHR, the majority were able to login and independently access their medication list, verify scheduled appointments, or send a secure message to their primary care provider.
Participants aged 50 years or older were less likely to complete orientation in 15 minutes or less compared to those under 50 years old (25% vs 79%, P=0.025); however, age was not a significant factor in ability to complete the online health educational module or perform at least 1 essential PHR function. Other demographic features, such as device ownership and daily Internet use, did not correlate with shorter orientation time, educational module completion, or PHR use (data available on request).
Participants also made suggestions for improvement during the debrief interviews. Several suggested applications for entertainment (gaming, magazines, or music) and 2 suggested that all patients should be introduced to their PHR during hospitalization (data available on request). No device software malfunction (eg, device freezes, Internet connection failures), hardware issues (eg, damage from falls, wetness, or repeated disinfectant exposure), or theft or misappropriation were reported by patients or observed by the RAs to date.
DISCUSSION
Our pilot study suggests that tablet‐based access to educational modules and PHRs can increase inpatient engagement in care with high satisfaction and minimal time for orientation. Surprisingly, even older patients and those who might be considered less tech savvy in terms of Internet use and device ownership were equally able to utilize our tablet interventions. Furthermore, we did not experience any hardware issues in the harsh physical environment of inpatient wards. These preliminary findings suggest the potential utility of tablets for clinically meaningful tasks by inpatients with a low rate of technical issues.
From a technical standpoint, our experience suggests several next steps. First, although orientation time was minimal, it might be even less if patients used their own mobile devices because most patients already owned one. This bring your own device (BYOD) approach could also promote postdischarge patient engagement. Second, the flexibility of a BYOD approach raises the question of whether to also allow patients a choice of application‐based versus browser‐based platforms for specific programs such as the PHR and educational video we used. Indeed, although we used a browser‐based approach, several other teams have developed patient‐facing engagement applications (or apps) for mobile devices,[4, 12] and hospitalists could prescribe apps at discharge as a more providers are now doing in outpatient settings.[13] Of course, maximizing flexibility for BYOD and Web‐based versus app‐based approaches would likely increase patient engagement but would come at the cost of more time and effort for hospital providers to vet apps/websites and educate patients about their use. Third, regardless of the devices and programs used, broader engagement of patients, nurses, hospitalists, and other providers will be needed in the future to identify key areas for development to avoid overburdening patients and providers.
From a quality‐improvement perspective, recent literature has considered broad clinical uses for tablets by hospital providers,[14, 15] but our experience suggests more specific opportunities to improve transitions of care though direct patient engagement. Tablets and other mobile devices may help improve discharge education for patients taking high‐risk medications such as warfarin or insulin using interactive educational modules similar to the hospital safety modules we used. Additionally, clinical staff, such as nurses and pharmacists, can be trained to deliver mobile device interventions such as education on high‐risk medications.[16] Ultimately, scale up for our intervention will require that mobile devices and content eventually improve and replace current practices by hospital staff (especially nurses) in a way that streamlines, rather than compounds, current workflow. This could increase efficiency in these discharge tasks and extend contributions of these providers to high‐quality transitions.
Our study has several limitations. First, although this is a pilot study with only 30 patients, it adds needed scale to much smaller (N=58) published feasibility studies of tablet computer use by inpatients.[11, 12] Beyond more robust feasibility testing, our study adds new data about mobile device use for specific clinical tasks in the hospital such as patient education and PHR use. Second, we did not track postdischarge outcomes to test the effects of our intervention on transition care quality; this will be a focus of our future research. Third, we used existing platforms for interactive educational modules and PHR access at our site; participant satisfaction in our study may not generalize to other platforms. Furthermore, most PHR platforms (including ours) are not optimally configured to engage patients during transitions of care, but we plan to integrate existing functions (such as ability to refill medications or change appointments) into discharge education and planning. Finally, we have not engaged caregivers as surrogates for cognitively impaired patients or adapted our platform for non‐English speakers; these are areas for development in our ongoing work. Overall, our pilot results help set the stage to deploy mobile devices for better patient monitoring, engagement, and quality of care in the inpatient setting.[17]
In conclusion, our pilot project demonstrates that tablet computers can be used to improve inpatient education and patient engagement in discharge planning. Inpatients are highly satisfied with the use of tablets to complete health education modules and access their PHR, with minimal time required for patient training and device management by hospital staff. Tablets and other mobile devices have significant potential to improve patients' education and engagement in their hospital care.
Acknowledgements
The authors thank the UCSF mHealth group and Center for Digital Health Innovation for advice and for providing tablet computers for this pilot project.
Disclosures: This article was presented as a finalist in the Research, Innovations, and Clinical Vignettes competition (Innovations category) at the 2013 Annual Meeting of the Society for Hospital Medicine. Dr. Auerbach was supported by grant K24HL098372 (NHLBI). Dr. Greysen was supported by a career development award (KL‐2) from the UCSF Clinical Translational Sciences Institute. The authors have declared they have no financial, personal, or other conflicts of interest relevant to this study.
- Hospital readmissions and the Affordable Care Act: paying for coordinated quality care. JAMA. 2011;306(16):1794–1795. , .
- A reengineered hospital discharge program to decrease re‐hospitalization. Ann Intern Med. 2009;150:178–187. , , , et al.
- The care transitions intervention: results of a randomized controlled trial. Arch Intern Med. 2006;166:1822–1828. , , , .
- Project RED. Meet Louise…and virtual patient advocates. Available at: http://www.bu.edu/fammed/projectred/publications/VirtualPatientAdvocateWebsiteInfo2.pdf. Accessed July 12, 2013.
- Use of handheld computers in medical education. A systematic review. J Gen Intern Med. 2006;21(5):531–537. , , , .
- Ongoing evaluation of ease‐of‐use and usefulness of wireless tablet computers within an ambulatory care unit. Stud Health Tech Inform. 2009;143:459–464. , , , .
- Use of a tablet personal computer to enhance patient care on multidisciplinary rounds. Am J Health Syst Pharm. 2009;66(21):1909–1911. .
- Experiences incorporating Tablet PCs into clinical pharmacists' workflow. J Healthc Inf Manag. 2005;19(4):32–37. , .
- The impact of mobile handheld technology on hospital physicians' work practices and patient care: a systematic review. J Am Med Inform Assoc. 2009;16(6):792–801. , , .
- An investigation of the efficacy of electronic consenting interfaces of research permissions management system in a hospital setting. Int J Med Inform. 2013;82(9):854–863. , , , et al.
- A tablet computer application for patients to participate in their hospital care. AMIA Annu Symp Proc. 2011;2011:1428–1435. , , , et al.
- Building and testing a patient‐centric electronic bedside communication center. J Gerontol Nurs. 2013;39(1):15–19. , , , et al.
- How apps are changing family medicine. J Fam Pract. 2013Jul;62(7):362–367. .
- The iPad: gadget or medical godsend? Ann Emerg Med. 2010;56(1):A21–A22. .
- How might the iPad change healthcare? J R Soc Med. 2012;105(6):233–241. , , , et al.
- Keeping the patient focus: using tablet technology to enhance education and practice. J Contin Educ Nurs. 2012;43(6):249–250. .
- Advancing the science of mHealth. J Health Commun. 2012;17(suppl 1):5–10. , , , et al.
BACKGROUND
Many hospitals have initiated intense efforts to improve transitions of care[1] such as discharge coordinators or transition coaches,[2, 3] but use of mobile devices as approaches to add or extend the value of human interventions have been understudied.[4] Additionally, many hospitalized patients experience substantial inactive time between provider visits, tests, and treatments. This time could be used to engage patients in their care through interactive health education modules and by learning to use their PHR to manage medications and postdischarge appointments.
Greater understanding of the advantages and limitations of mobile devices may be important for improving transitions of care and may help leverage existing hospital personnel resources. However, prior studies have focused on healthcare provider uses of tablet computers for medical education,[5] to collect clinical registration data,[6] or to do clinical work (eg, check labs, write notes)[7, 8, 9] primarily in outpatient settings; few studies have focused on patient uses for this technology in hospital settings.[10, 11] To address these knowledge gaps, we conducted a pilot project to explore inpatient satisfaction with bedside tablets and barriers to usability. Additionally, we evaluated use of these devices to deliver 2 specific Web‐based programs: (1) an interactive video to improve inpatient education about hospital safety, and (2) PHR access to promote inpatient engagement in discharge planning.
METHODS
Study Design, Patient Selection, and Devices/Programs
We conducted a prospective study of tablet computers to engage patients in their care and discharge planning through Web‐based interactive health education modules and use of PHRs. We used 2 tablets, distributed daily by research assistants (RAs) to eligible patients after morning rounds. Inclusion criteria for patients were ability to speak English and admission to the medical (hospitalist) service at University of California San Francisco (UCSF) Medical Center. Exclusion criteria were intensive care unit admission, contact isolation, or inability to complete the consent process due to altered mental status or cognitive impairment.
RAs screened patients for inclusion/exclusion via the electronic medical record and then approached them after rounds for enrollment (11:00 am1:00 pm). RAs then performed a tiered orientation tailored to individual patient experience and needs. First, they delivered a brief tutorial focused on the tablet itself and its basic functions (touchscreen, keypad, and Internet browser use). Second, RAs showed patients how to access the online educational health module and how to navigate content within the module. RAs next explained what the PHR is and demonstrated how to login, how to navigate tabs within the PHR, and how to perform basic tasks (view/refill medications, view/modify appointments, and view/send messages to providers). The RAs left devices with patients for 3 to 5 hours and returned to collect them and perform debriefing interviews. After each device was returned, RAs cleaned devices with disinfectant wipes available in patient rooms and checked for physical damage or software malfunctions (eg, unable to turn on or unlock). Finally, RAs used the reset function to erase any personal data or setting modifications made by patients and docked the devices overnight to resynchronize the original settings and recharge the batteries.
We used the 16 gigabyte Apple iPad2 (Apple Inc., Cupertino, CA) without any enclosures, cases, or security devices. Our educational health module was Patient Safety in the Hospital, which was professionally developed by Emmi Solutions (
Survey Instruments and Data Collection
We developed pre‐ and postintervention surveys to characterize patients' demographics, device ownership, and health‐related Internet activities in the last year based on questions used in the Centers for Disease Control and Prevention National Health Interview Study (
Analyses
We used frequency analysis to describe patient demographics, ability to complete online health educational modules, and utilization of their PHR. We performed bivariate analyses (Fisher exact test) to assess correlations between demographics (age, device ownership, Internet use) and key pilot program performance measures (orientation time 15 minutes, online health module completion, and completion of 1 essential function in the PHR). All analyses were performed in SAS 9.2 (SAS Institute Inc., Cary, NC). The institutional review board of record for UCSF approved this study.
RESULTS
As shown in Table 1, we enrolled 30 patients. Most participants (60%) were aged 40 years or older, and most (87%) owned a mobile device; 70% owned a laptop and 60% owned a smartphone, but few (22%) owned a computer tablet. Most participants accessed the Internet daily, but fewer reported Internet use for health tasks; about half (52%) communicated with a provider, but few refilled a prescription (27%) or scheduled an appointment (21%) online over the last year.
Characteristic | No. (%) |
---|---|
Age, y | |
1839 | 11 (38%) |
4049 | 5 (18%) |
5059 | 4 (14%) |
6069 | 5 (18%) |
7079 | 3 (10%) |
Gender, female | 17 (60%) |
Device ownership | |
Desktop computer | 12 (44%) |
Laptop computer | 19 (70%) |
Smart phone | 17 (60%) |
Tablet computer | 6 (22%) |
Any mobile device (laptop, smartphone, or tablet) | 26 (87%) |
Internet use | |
Daily | 21 (72%) |
Several times a week | 3 (10%) |
Once a week or less | 5 (18%) |
Prestudy online health tasks | |
Looked up health information | 21 (72%) |
Communicated with provider | 15 (52%) |
Refilled prescription | 8 (27%) |
Scheduled medical appointment | 6 (21%) |
Nearly all participants (90%) were satisfied or very satisfied with their experience using the tablet in the hospital (Figure 1). Most (87%) required 30 minutes or less for basic orientation, and 70% required only 15 minutes or less. Most participants (83%) were able to independently complete an interactive health education module on hospital safety and were highly satisfied with the module. Despite the fact that 73% of participants were first‐time users of our PHR, the majority were able to login and independently access their medication list, verify scheduled appointments, or send a secure message to their primary care provider.
Participants aged 50 years or older were less likely to complete orientation in 15 minutes or less compared to those under 50 years old (25% vs 79%, P=0.025); however, age was not a significant factor in ability to complete the online health educational module or perform at least 1 essential PHR function. Other demographic features, such as device ownership and daily Internet use, did not correlate with shorter orientation time, educational module completion, or PHR use (data available on request).
Participants also made suggestions for improvement during the debrief interviews. Several suggested applications for entertainment (gaming, magazines, or music) and 2 suggested that all patients should be introduced to their PHR during hospitalization (data available on request). No device software malfunction (eg, device freezes, Internet connection failures), hardware issues (eg, damage from falls, wetness, or repeated disinfectant exposure), or theft or misappropriation were reported by patients or observed by the RAs to date.
DISCUSSION
Our pilot study suggests that tablet‐based access to educational modules and PHRs can increase inpatient engagement in care with high satisfaction and minimal time for orientation. Surprisingly, even older patients and those who might be considered less tech savvy in terms of Internet use and device ownership were equally able to utilize our tablet interventions. Furthermore, we did not experience any hardware issues in the harsh physical environment of inpatient wards. These preliminary findings suggest the potential utility of tablets for clinically meaningful tasks by inpatients with a low rate of technical issues.
From a technical standpoint, our experience suggests several next steps. First, although orientation time was minimal, it might be even less if patients used their own mobile devices because most patients already owned one. This bring your own device (BYOD) approach could also promote postdischarge patient engagement. Second, the flexibility of a BYOD approach raises the question of whether to also allow patients a choice of application‐based versus browser‐based platforms for specific programs such as the PHR and educational video we used. Indeed, although we used a browser‐based approach, several other teams have developed patient‐facing engagement applications (or apps) for mobile devices,[4, 12] and hospitalists could prescribe apps at discharge as a more providers are now doing in outpatient settings.[13] Of course, maximizing flexibility for BYOD and Web‐based versus app‐based approaches would likely increase patient engagement but would come at the cost of more time and effort for hospital providers to vet apps/websites and educate patients about their use. Third, regardless of the devices and programs used, broader engagement of patients, nurses, hospitalists, and other providers will be needed in the future to identify key areas for development to avoid overburdening patients and providers.
From a quality‐improvement perspective, recent literature has considered broad clinical uses for tablets by hospital providers,[14, 15] but our experience suggests more specific opportunities to improve transitions of care though direct patient engagement. Tablets and other mobile devices may help improve discharge education for patients taking high‐risk medications such as warfarin or insulin using interactive educational modules similar to the hospital safety modules we used. Additionally, clinical staff, such as nurses and pharmacists, can be trained to deliver mobile device interventions such as education on high‐risk medications.[16] Ultimately, scale up for our intervention will require that mobile devices and content eventually improve and replace current practices by hospital staff (especially nurses) in a way that streamlines, rather than compounds, current workflow. This could increase efficiency in these discharge tasks and extend contributions of these providers to high‐quality transitions.
Our study has several limitations. First, although this is a pilot study with only 30 patients, it adds needed scale to much smaller (N=58) published feasibility studies of tablet computer use by inpatients.[11, 12] Beyond more robust feasibility testing, our study adds new data about mobile device use for specific clinical tasks in the hospital such as patient education and PHR use. Second, we did not track postdischarge outcomes to test the effects of our intervention on transition care quality; this will be a focus of our future research. Third, we used existing platforms for interactive educational modules and PHR access at our site; participant satisfaction in our study may not generalize to other platforms. Furthermore, most PHR platforms (including ours) are not optimally configured to engage patients during transitions of care, but we plan to integrate existing functions (such as ability to refill medications or change appointments) into discharge education and planning. Finally, we have not engaged caregivers as surrogates for cognitively impaired patients or adapted our platform for non‐English speakers; these are areas for development in our ongoing work. Overall, our pilot results help set the stage to deploy mobile devices for better patient monitoring, engagement, and quality of care in the inpatient setting.[17]
In conclusion, our pilot project demonstrates that tablet computers can be used to improve inpatient education and patient engagement in discharge planning. Inpatients are highly satisfied with the use of tablets to complete health education modules and access their PHR, with minimal time required for patient training and device management by hospital staff. Tablets and other mobile devices have significant potential to improve patients' education and engagement in their hospital care.
Acknowledgements
The authors thank the UCSF mHealth group and Center for Digital Health Innovation for advice and for providing tablet computers for this pilot project.
Disclosures: This article was presented as a finalist in the Research, Innovations, and Clinical Vignettes competition (Innovations category) at the 2013 Annual Meeting of the Society for Hospital Medicine. Dr. Auerbach was supported by grant K24HL098372 (NHLBI). Dr. Greysen was supported by a career development award (KL‐2) from the UCSF Clinical Translational Sciences Institute. The authors have declared they have no financial, personal, or other conflicts of interest relevant to this study.
BACKGROUND
Many hospitals have initiated intense efforts to improve transitions of care[1] such as discharge coordinators or transition coaches,[2, 3] but use of mobile devices as approaches to add or extend the value of human interventions have been understudied.[4] Additionally, many hospitalized patients experience substantial inactive time between provider visits, tests, and treatments. This time could be used to engage patients in their care through interactive health education modules and by learning to use their PHR to manage medications and postdischarge appointments.
Greater understanding of the advantages and limitations of mobile devices may be important for improving transitions of care and may help leverage existing hospital personnel resources. However, prior studies have focused on healthcare provider uses of tablet computers for medical education,[5] to collect clinical registration data,[6] or to do clinical work (eg, check labs, write notes)[7, 8, 9] primarily in outpatient settings; few studies have focused on patient uses for this technology in hospital settings.[10, 11] To address these knowledge gaps, we conducted a pilot project to explore inpatient satisfaction with bedside tablets and barriers to usability. Additionally, we evaluated use of these devices to deliver 2 specific Web‐based programs: (1) an interactive video to improve inpatient education about hospital safety, and (2) PHR access to promote inpatient engagement in discharge planning.
METHODS
Study Design, Patient Selection, and Devices/Programs
We conducted a prospective study of tablet computers to engage patients in their care and discharge planning through Web‐based interactive health education modules and use of PHRs. We used 2 tablets, distributed daily by research assistants (RAs) to eligible patients after morning rounds. Inclusion criteria for patients were ability to speak English and admission to the medical (hospitalist) service at University of California San Francisco (UCSF) Medical Center. Exclusion criteria were intensive care unit admission, contact isolation, or inability to complete the consent process due to altered mental status or cognitive impairment.
RAs screened patients for inclusion/exclusion via the electronic medical record and then approached them after rounds for enrollment (11:00 am1:00 pm). RAs then performed a tiered orientation tailored to individual patient experience and needs. First, they delivered a brief tutorial focused on the tablet itself and its basic functions (touchscreen, keypad, and Internet browser use). Second, RAs showed patients how to access the online educational health module and how to navigate content within the module. RAs next explained what the PHR is and demonstrated how to login, how to navigate tabs within the PHR, and how to perform basic tasks (view/refill medications, view/modify appointments, and view/send messages to providers). The RAs left devices with patients for 3 to 5 hours and returned to collect them and perform debriefing interviews. After each device was returned, RAs cleaned devices with disinfectant wipes available in patient rooms and checked for physical damage or software malfunctions (eg, unable to turn on or unlock). Finally, RAs used the reset function to erase any personal data or setting modifications made by patients and docked the devices overnight to resynchronize the original settings and recharge the batteries.
We used the 16 gigabyte Apple iPad2 (Apple Inc., Cupertino, CA) without any enclosures, cases, or security devices. Our educational health module was Patient Safety in the Hospital, which was professionally developed by Emmi Solutions (
Survey Instruments and Data Collection
We developed pre‐ and postintervention surveys to characterize patients' demographics, device ownership, and health‐related Internet activities in the last year based on questions used in the Centers for Disease Control and Prevention National Health Interview Study (
Analyses
We used frequency analysis to describe patient demographics, ability to complete online health educational modules, and utilization of their PHR. We performed bivariate analyses (Fisher exact test) to assess correlations between demographics (age, device ownership, Internet use) and key pilot program performance measures (orientation time 15 minutes, online health module completion, and completion of 1 essential function in the PHR). All analyses were performed in SAS 9.2 (SAS Institute Inc., Cary, NC). The institutional review board of record for UCSF approved this study.
RESULTS
As shown in Table 1, we enrolled 30 patients. Most participants (60%) were aged 40 years or older, and most (87%) owned a mobile device; 70% owned a laptop and 60% owned a smartphone, but few (22%) owned a computer tablet. Most participants accessed the Internet daily, but fewer reported Internet use for health tasks; about half (52%) communicated with a provider, but few refilled a prescription (27%) or scheduled an appointment (21%) online over the last year.
Characteristic | No. (%) |
---|---|
Age, y | |
1839 | 11 (38%) |
4049 | 5 (18%) |
5059 | 4 (14%) |
6069 | 5 (18%) |
7079 | 3 (10%) |
Gender, female | 17 (60%) |
Device ownership | |
Desktop computer | 12 (44%) |
Laptop computer | 19 (70%) |
Smart phone | 17 (60%) |
Tablet computer | 6 (22%) |
Any mobile device (laptop, smartphone, or tablet) | 26 (87%) |
Internet use | |
Daily | 21 (72%) |
Several times a week | 3 (10%) |
Once a week or less | 5 (18%) |
Prestudy online health tasks | |
Looked up health information | 21 (72%) |
Communicated with provider | 15 (52%) |
Refilled prescription | 8 (27%) |
Scheduled medical appointment | 6 (21%) |
Nearly all participants (90%) were satisfied or very satisfied with their experience using the tablet in the hospital (Figure 1). Most (87%) required 30 minutes or less for basic orientation, and 70% required only 15 minutes or less. Most participants (83%) were able to independently complete an interactive health education module on hospital safety and were highly satisfied with the module. Despite the fact that 73% of participants were first‐time users of our PHR, the majority were able to login and independently access their medication list, verify scheduled appointments, or send a secure message to their primary care provider.
Participants aged 50 years or older were less likely to complete orientation in 15 minutes or less compared to those under 50 years old (25% vs 79%, P=0.025); however, age was not a significant factor in ability to complete the online health educational module or perform at least 1 essential PHR function. Other demographic features, such as device ownership and daily Internet use, did not correlate with shorter orientation time, educational module completion, or PHR use (data available on request).
Participants also made suggestions for improvement during the debrief interviews. Several suggested applications for entertainment (gaming, magazines, or music) and 2 suggested that all patients should be introduced to their PHR during hospitalization (data available on request). No device software malfunction (eg, device freezes, Internet connection failures), hardware issues (eg, damage from falls, wetness, or repeated disinfectant exposure), or theft or misappropriation were reported by patients or observed by the RAs to date.
DISCUSSION
Our pilot study suggests that tablet‐based access to educational modules and PHRs can increase inpatient engagement in care with high satisfaction and minimal time for orientation. Surprisingly, even older patients and those who might be considered less tech savvy in terms of Internet use and device ownership were equally able to utilize our tablet interventions. Furthermore, we did not experience any hardware issues in the harsh physical environment of inpatient wards. These preliminary findings suggest the potential utility of tablets for clinically meaningful tasks by inpatients with a low rate of technical issues.
From a technical standpoint, our experience suggests several next steps. First, although orientation time was minimal, it might be even less if patients used their own mobile devices because most patients already owned one. This bring your own device (BYOD) approach could also promote postdischarge patient engagement. Second, the flexibility of a BYOD approach raises the question of whether to also allow patients a choice of application‐based versus browser‐based platforms for specific programs such as the PHR and educational video we used. Indeed, although we used a browser‐based approach, several other teams have developed patient‐facing engagement applications (or apps) for mobile devices,[4, 12] and hospitalists could prescribe apps at discharge as a more providers are now doing in outpatient settings.[13] Of course, maximizing flexibility for BYOD and Web‐based versus app‐based approaches would likely increase patient engagement but would come at the cost of more time and effort for hospital providers to vet apps/websites and educate patients about their use. Third, regardless of the devices and programs used, broader engagement of patients, nurses, hospitalists, and other providers will be needed in the future to identify key areas for development to avoid overburdening patients and providers.
From a quality‐improvement perspective, recent literature has considered broad clinical uses for tablets by hospital providers,[14, 15] but our experience suggests more specific opportunities to improve transitions of care though direct patient engagement. Tablets and other mobile devices may help improve discharge education for patients taking high‐risk medications such as warfarin or insulin using interactive educational modules similar to the hospital safety modules we used. Additionally, clinical staff, such as nurses and pharmacists, can be trained to deliver mobile device interventions such as education on high‐risk medications.[16] Ultimately, scale up for our intervention will require that mobile devices and content eventually improve and replace current practices by hospital staff (especially nurses) in a way that streamlines, rather than compounds, current workflow. This could increase efficiency in these discharge tasks and extend contributions of these providers to high‐quality transitions.
Our study has several limitations. First, although this is a pilot study with only 30 patients, it adds needed scale to much smaller (N=58) published feasibility studies of tablet computer use by inpatients.[11, 12] Beyond more robust feasibility testing, our study adds new data about mobile device use for specific clinical tasks in the hospital such as patient education and PHR use. Second, we did not track postdischarge outcomes to test the effects of our intervention on transition care quality; this will be a focus of our future research. Third, we used existing platforms for interactive educational modules and PHR access at our site; participant satisfaction in our study may not generalize to other platforms. Furthermore, most PHR platforms (including ours) are not optimally configured to engage patients during transitions of care, but we plan to integrate existing functions (such as ability to refill medications or change appointments) into discharge education and planning. Finally, we have not engaged caregivers as surrogates for cognitively impaired patients or adapted our platform for non‐English speakers; these are areas for development in our ongoing work. Overall, our pilot results help set the stage to deploy mobile devices for better patient monitoring, engagement, and quality of care in the inpatient setting.[17]
In conclusion, our pilot project demonstrates that tablet computers can be used to improve inpatient education and patient engagement in discharge planning. Inpatients are highly satisfied with the use of tablets to complete health education modules and access their PHR, with minimal time required for patient training and device management by hospital staff. Tablets and other mobile devices have significant potential to improve patients' education and engagement in their hospital care.
Acknowledgements
The authors thank the UCSF mHealth group and Center for Digital Health Innovation for advice and for providing tablet computers for this pilot project.
Disclosures: This article was presented as a finalist in the Research, Innovations, and Clinical Vignettes competition (Innovations category) at the 2013 Annual Meeting of the Society for Hospital Medicine. Dr. Auerbach was supported by grant K24HL098372 (NHLBI). Dr. Greysen was supported by a career development award (KL‐2) from the UCSF Clinical Translational Sciences Institute. The authors have declared they have no financial, personal, or other conflicts of interest relevant to this study.
- Hospital readmissions and the Affordable Care Act: paying for coordinated quality care. JAMA. 2011;306(16):1794–1795. , .
- A reengineered hospital discharge program to decrease re‐hospitalization. Ann Intern Med. 2009;150:178–187. , , , et al.
- The care transitions intervention: results of a randomized controlled trial. Arch Intern Med. 2006;166:1822–1828. , , , .
- Project RED. Meet Louise…and virtual patient advocates. Available at: http://www.bu.edu/fammed/projectred/publications/VirtualPatientAdvocateWebsiteInfo2.pdf. Accessed July 12, 2013.
- Use of handheld computers in medical education. A systematic review. J Gen Intern Med. 2006;21(5):531–537. , , , .
- Ongoing evaluation of ease‐of‐use and usefulness of wireless tablet computers within an ambulatory care unit. Stud Health Tech Inform. 2009;143:459–464. , , , .
- Use of a tablet personal computer to enhance patient care on multidisciplinary rounds. Am J Health Syst Pharm. 2009;66(21):1909–1911. .
- Experiences incorporating Tablet PCs into clinical pharmacists' workflow. J Healthc Inf Manag. 2005;19(4):32–37. , .
- The impact of mobile handheld technology on hospital physicians' work practices and patient care: a systematic review. J Am Med Inform Assoc. 2009;16(6):792–801. , , .
- An investigation of the efficacy of electronic consenting interfaces of research permissions management system in a hospital setting. Int J Med Inform. 2013;82(9):854–863. , , , et al.
- A tablet computer application for patients to participate in their hospital care. AMIA Annu Symp Proc. 2011;2011:1428–1435. , , , et al.
- Building and testing a patient‐centric electronic bedside communication center. J Gerontol Nurs. 2013;39(1):15–19. , , , et al.
- How apps are changing family medicine. J Fam Pract. 2013Jul;62(7):362–367. .
- The iPad: gadget or medical godsend? Ann Emerg Med. 2010;56(1):A21–A22. .
- How might the iPad change healthcare? J R Soc Med. 2012;105(6):233–241. , , , et al.
- Keeping the patient focus: using tablet technology to enhance education and practice. J Contin Educ Nurs. 2012;43(6):249–250. .
- Advancing the science of mHealth. J Health Commun. 2012;17(suppl 1):5–10. , , , et al.
- Hospital readmissions and the Affordable Care Act: paying for coordinated quality care. JAMA. 2011;306(16):1794–1795. , .
- A reengineered hospital discharge program to decrease re‐hospitalization. Ann Intern Med. 2009;150:178–187. , , , et al.
- The care transitions intervention: results of a randomized controlled trial. Arch Intern Med. 2006;166:1822–1828. , , , .
- Project RED. Meet Louise…and virtual patient advocates. Available at: http://www.bu.edu/fammed/projectred/publications/VirtualPatientAdvocateWebsiteInfo2.pdf. Accessed July 12, 2013.
- Use of handheld computers in medical education. A systematic review. J Gen Intern Med. 2006;21(5):531–537. , , , .
- Ongoing evaluation of ease‐of‐use and usefulness of wireless tablet computers within an ambulatory care unit. Stud Health Tech Inform. 2009;143:459–464. , , , .
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