News from NORD

National Tissue Biobank Established for Coats Disease

Publish date: February 20, 2018

 

The Jack McGovern Coats’ Disease Foundation has established a national tissue biobank at the Wilmer Eye Institute of Johns Hopkins Medicine to facilitate research on the causes of, and most effective treatments for, Coats’ disease. This rare disorder affects the retina and has been diagnosed in children as young as four months. More.

Recommended Reading

Cases link vitiligoid lichen sclerosus and darker skin
MDedge Pediatrics
Macrophage activation syndrome’s impact in childhood SLE felt mostly early
MDedge Pediatrics
NORD to Moderate Panel at NIH Rare Disease Day Event
MDedge Pediatrics
Rare Disease Day Events Planned for Campuses, Hospitals, and State Legislatures
MDedge Pediatrics
Letter to Congress: NORD and Others Oppose “Right to Try”
MDedge Pediatrics
NORD Advocates for Iowa Co-pay Choice Bill
MDedge Pediatrics
NORD Submits Comments to the Centers for Medicare and Medicaid Services
MDedge Pediatrics
NORD Call for Abstracts Reopened
MDedge Pediatrics
National Health Council to Host Workshop for Patient Organizations
MDedge Pediatrics
Abstracts Being Accepted for Cornelia de Lange Syndrome Foundation Symposium
MDedge Pediatrics